妊娠滋养细胞疾病患者对疾病的心理表征：患者如何看待自己的病情？
Mental Representations of Illness in Patients with Gestational Trophoblastic Disease: How Do Patients Perceive Their Condition?
作者信息
Di Mattei Valentina E, Carnelli Letizia, Mazzetti Martina, Bernardi Martina, Di Pierro Rossella, Bergamini Alice, Mangili Giorgia, Candiani Massimo, Sarno Lucio
机构信息
Vita-Salute San Raffaele University, Milan, Italy.
Clinical and Health Psychology Unit, IRCCS San Raffaele Hospital, Milan, Italy.
出版信息
PLoS One. 2016 Apr 21;11(4):e0153869. doi: 10.1371/journal.pone.0153869. eCollection 2016.
BACKGROUND
Gestational Trophoblastic Disease comprises a group of benign and malignant disorders that derive from the placenta. Using Leventhal's Common-Sense Model as a theoretical framework, this paper examines illness perception in women who have been diagnosed with this disease.
METHODS
Thirty-one women diagnosed with Gestational Trophoblastic Disease in a hospital in Italy were asked to complete the Illness Perception Questionnaire-Revised to measure the following: illness Identity, illness opinions and causes of Gestational Trophoblastic Disease.
RESULTS
High mean scores were observed in the Emotional representations and Treatment control subscales. A significant difference emerged between hydatidiform mole patients and those with gestational trophoblastic neoplasia on the Identity subscale. A significant correlation emerged between "time since diagnosis" and the Treatment control subscale.
DISCUSSION
This study is the first to investigate illness perception in Gestational Trophoblastic Disease. From a clinical perspective the results highlight the need for multidisciplinary support programs to promote a more realistic illness perception.
背景
妊娠滋养细胞疾病是一组源自胎盘的良性和恶性疾病。本文以莱文索尔的常识模型为理论框架，研究了被诊断患有该疾病的女性的疾病认知。
方法
在意大利一家医院，31名被诊断患有妊娠滋养细胞疾病的女性被要求完成修订后的疾病认知问卷，以测量以下方面：疾病认知、对妊娠滋养细胞疾病的看法及病因。
结果
在情感表征和治疗控制子量表中观察到较高的平均得分。在身份子量表上，葡萄胎患者与妊娠滋养细胞肿瘤患者之间存在显著差异。“确诊时间”与治疗控制子量表之间存在显著相关性。
讨论
本研究首次调查了妊娠滋养细胞疾病患者的疾病认知。从临床角度来看，研究结果强调了多学科支持项目的必要性，以促进更现实的疾病认知。
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