Knapfel Sarah, Plattner Broc, Santo Taylor, Tyndall Sarah
College of Nursing, University of Colorado, Denver, CO, USA.
Stud Health Technol Inform. 2014;201:413-7.
Patients today are demanding greater access to and control of their health information. Personal Health Records (PHRs) are paving the way for patients to update, maintain and share their comprehensive medical information. The opportunity to develop and maintain a PHR is equally as important for those individuals in the disabled community who face many unique challenges to access health information. The project, conducted as part of our graduate course, explored the use of Second Life to educate the disabled community on Virtual Ability Island (VAI) about the importance of PHRs. The project examined the tools needed to offer such a presentation for the disabled community and identified legal, ethical, social, or public challenges for PHR use. The project outcomes indicated a desire for knowledge and genuine concerns by the attendees regarding PHRs. The authors note that more research is needed to make this technology available to all.
如今的患者要求能更多地获取并掌控自己的健康信息。个人健康记录（PHR）正在为患者更新、维护和共享其全面的医疗信息铺平道路。对于残疾人群体中的个体而言，开发和维护一份个人健康记录同样重要，因为他们在获取健康信息方面面临诸多独特挑战。作为我们研究生课程的一部分开展的这个项目，探讨了如何利用“第二人生”在虚拟能力岛（VAI）上向残疾人群体传授个人健康记录的重要性。该项目研究了为残疾人群体进行此类展示所需的工具，并确定了使用个人健康记录时面临的法律、伦理、社会或公共方面的挑战。项目结果表明，与会者对个人健康记录有求知欲且真正关心。作者指出，需要开展更多研究，以使这项技术能为所有人所用。
