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经验抽样法用于捕捉自闭症谱系障碍个体日常经历的可行性和可用性。

Feasibility and usability of experience sampling methodology for capturing everyday experiences of individuals with autism spectrum disorders.

作者信息

Chen Yu-Wei, Bundy Anita, Cordier Reinie, Einfeld Stewart

机构信息

Faculty of Health Sciences, The University of Sydney, 75 East Street Lidcombe, New South Wales 2141, Australia.

Faculty of Health Sciences, The University of Sydney, 75 East Street Lidcombe, New South Wales 2141, Australia.

出版信息

Disabil Health J. 2014 Jul;7(3):361-6. doi: 10.1016/j.dhjo.2014.04.004. Epub 2014 May 5.

DOI:10.1016/j.dhjo.2014.04.004
PMID:24947579
Abstract

BACKGROUND

Understanding experiences from the perspective of adults with autism spectrum disorders (ASD), in the myriad of circumstances in which they find themselves every day, is crucial for developing client-centered interventions. However, capturing these experiences can be difficult.

OBJECTIVE

To investigate the feasibility and usability of experience sampling method (ESM), an ecological momentary assessment, for studying individuals with ASD.

METHODS

Four participants (2 males) with Asperger's syndrome or high functioning autism aged 16-32 years carried an iPod touch or iPhone with a pre-installed ESM survey exploring the situation and their perceived internal experiences. Participants were asked to respond to the survey 7 times daily, at random times generated by the device, for 7 days.

RESULTS

A high signal response rate (mean = 71%) and a short average time required for survey completion (mean = 1 min 42 s) supported feasibility of the ESM for use in research with individuals with ASD. Participants reported that the questions were straightforward and that survey completion interfered very little with everyday activities, supporting acceptability of the method. Results of a split-week analysis revealed consistency of experiences; correlations among experiences that are linked logically provided evidence of the internal logic of data gathered using the ESM. Through graphic analysis, we illustrated the usability of ESM for capturing the influence of everyday contexts on internal experiences/perceptions.

CONCLUSIONS

The ESM holds promise for examining the impact of social context on the everyday experiences of individuals with ASD.

摘要

背景

从自闭症谱系障碍(ASD)成年人的角度理解他们在日常所处的各种情况下的经历,对于制定以客户为中心的干预措施至关重要。然而,捕捉这些经历可能很困难。

目的

研究经验抽样法(ESM)这种生态瞬时评估方法用于研究ASD个体的可行性和可用性。

方法

四名年龄在16 - 32岁之间患有阿斯伯格综合征或高功能自闭症的参与者(2名男性)携带预安装了ESM调查问卷的iPod touch或iPhone,该问卷用于探究情况以及他们感知到的内心体验。要求参与者在设备随机生成的时间每天回复问卷7次,持续7天。

结果

高信号响应率(平均 = 71%)和完成调查所需的较短平均时间(平均 = 1分42秒)支持了ESM用于ASD个体研究的可行性。参与者报告说问题简单明了,完成调查对日常活动的干扰很小,这支持了该方法的可接受性。分周分析的结果显示了经历的一致性;逻辑上相关的经历之间的相关性为使用ESM收集的数据的内在逻辑提供了证据。通过图形分析,我们展示了ESM在捕捉日常情境对内心体验/感知的影响方面的可用性。

结论

ESM有望用于研究社会背景对ASD个体日常经历的影响。

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