Zabora James, Buzaglo Joanne, Kennedy Vicki, Richards Tiffany, Schapmire Tara, Zebrack Brad, Ghobrial Irene M
Life with Cancer,Inova Health System,Fairfax,Virginia.
Cancer Support Community,Washington,DC.
Palliat Support Care. 2015 Aug;13(4):829-38. doi: 10.1017/S1478951514000649. Epub 2014 Jun 24.
A model of psychosocial care specific for patients with multiple myeloma and their caregivers has not yet been proposed. We sought to develop a model of care that considers the specific profile of this disease.
The authors, representing a multidisciplinary care team, met in December of 2012 to identify a model of psychosocial care for patients with multiple myeloma and their caregivers. This model was determined by consensus during the meeting and via total agreement following the meeting. The meeting was sponsored by Onyx Pharmaceuticals.
The need for targeted psychosocial care for the multiple myeloma patient and caregiver throughout the disease process is essential to ensure quality of life and optimal treatment outcomes. We propose herein the first known model of care for the treatment of multiple myeloma that engages both the patient and their caregivers.
Innovative partnerships between psychosocial providers and other entities such as pharmaceutical companies can maximize resources for comprehensive program development. This manuscript proposes a model of care that promotes active engagement in therapies for multiple myeloma while engaging the individual patient and their family caregivers. This treatment approach must be evidence based in terms of distress screening tools, comprehensive psychosocial assessments, and, most importantly, in the interventions and measurements of response that clinicians apply to this population.
尚未提出针对多发性骨髓瘤患者及其护理人员的特定心理社会护理模式。我们试图开发一种考虑到该疾病特殊情况的护理模式。
代表多学科护理团队的作者们于2012年12月会面，以确定针对多发性骨髓瘤患者及其护理人员的心理社会护理模式。该模式在会议期间通过共识确定，并在会议后获得完全一致认可。此次会议由安进制药公司赞助。
在整个疾病过程中，为多发性骨髓瘤患者及其护理人员提供有针对性的心理社会护理对于确保生活质量和最佳治疗效果至关重要。我们在此提出首个已知的涉及患者及其护理人员的多发性骨髓瘤治疗护理模式。
心理社会服务提供者与制药公司等其他实体之间的创新合作关系可以最大限度地利用资源进行全面项目开发。本手稿提出了一种护理模式，该模式在促使个体患者及其家庭护理人员参与的同时，促进积极参与多发性骨髓瘤治疗。这种治疗方法在痛苦筛查工具、全面的心理社会评估方面，最重要的是在临床医生应用于该人群的干预措施和反应测量方面，必须有循证依据。
