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“我们从这里何去何从?”患有多种疾病的患者、他们的护理人员和家庭医生所表达的医疗系统困境。

"Where do we go from here?" Health system frustrations expressed by patients with multimorbidity, their caregivers and family physicians.

作者信息

Gill Ashlinder, Kuluski Kerry, Jaakkimainen Liisa, Naganathan Gayathri, Upshur Ross, Wodchis Walter P

机构信息

Graduate Student, Institute of Health Policy, Management & Evaluation, University of Toronto, Bridgepoint Collaboratory for Research and Innovation, Bridgepoint Active Healthcare, Toronto, ON.

Research Scientist, Bridgepoint Collaboratory for Research and Innovation, Bridgepoint Active Healthcare, Institute of Health Policy, Management & Evaluation, University of Toronto, Toronto, ON.

出版信息

Healthc Policy. 2014 May;9(4):73-89.


DOI:
PMID:24973485
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4749886/
Abstract

OBJECTIVES: This study explored the care challenges experienced by older patients with multimorbidity, their informal caregivers and family physicians. APPROACH: Semi-structured interviews were conducted with 27 patients, their informal caregivers and family physicians. Qualitative description was used to identify key themes in the interview transcripts. RESULTS: Participants experienced many common challenges when managing multimorbidity, including a lack of decision-making support, poor communication and uncoordinated health services. Within these themes, unique perspectives specific to the role of being a patient, caregiver or family physician emerged. CONCLUSION: The study adds to a limited evidence base on the experience of patients with multimorbidity. By including the perspectives of their family caregivers and physicians, we provide important insight into the management of multimorbidity and recommend the uptake of specific strategies to address them.

摘要

目的:本研究探讨了患有多种慢性病的老年患者、他们的非正式照护者以及家庭医生所面临的照护挑战。 方法:对27名患者、他们的非正式照护者和家庭医生进行了半结构化访谈。采用定性描述方法来确定访谈记录中的关键主题。 结果:参与者在管理多种慢性病时遇到了许多共同的挑战,包括缺乏决策支持、沟通不畅以及医疗服务不协调。在这些主题中,出现了患者、照护者或家庭医生角色所特有的独特观点。 结论:该研究为关于患有多种慢性病患者经历的有限证据库增添了内容。通过纳入家庭照护者和医生的观点,我们对多种慢性病的管理提供了重要见解,并建议采用特定策略来应对这些问题。

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本文引用的文献

[1]
GPs' perspectives on the management of patients with multimorbidity: systematic review and synthesis of qualitative research.

BMJ Open. 2013-9-13

[2]
A qualitative descriptive study on the alignment of care goals between older persons with multi-morbidities, their family physicians and informal caregivers.

BMC Fam Pract. 2013-9-8

[3]
The care delivery experience of hospitalized patients with complex chronic disease.

Health Expect. 2013-5-27

[4]
Building access to specialist care through e-consultation.

Open Med. 2013-1-8

[5]
The IMPACT clinic: innovative model of interprofessional primary care for elderly patients with complex health care needs.

Can Fam Physician. 2013-3

[6]
Case management and self-management support for frequent users with chronic disease in primary care: a pragmatic randomized controlled trial.

BMC Health Serv Res. 2013-2-7

[7]
The impact of multiple chronic diseases on ambulatory care use; a population based study in Ontario, Canada.

BMC Health Serv Res. 2012-12-10

[8]
Family matters in health care delivery.

JAMA. 2012-10-17

[9]
Improving chronic care: the "guided care" model.

Perm J. 2008

[10]
Shifting priorities in multimorbidity: a longitudinal qualitative study of patient's prioritization of multiple conditions.

Chronic Illn. 2011-6

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