Christine Platt, RN, BSN, is Graduate Student, College of Nursing, Brigham Young University, Provo, Utah. Susanne Olsen Roper, PhD, is Associate Professor, School of Family Life, Brigham Young University, Provo, Utah. Barbara Mandleco, RN, PhD, ANEF, is Professor; and Donna Freeborn, PhD, FNP-BC, CNM, is Assistant Professor, College of Nursing, Brigham Young University, Provo, Utah.
Nurs Res. 2014 Jul-Aug;63(4):235-42. doi: 10.1097/NNR.0000000000000046.
Raising a child with a disability (CWD) in the home is increasing across the globe. Because of caregiver burden and the complexity of care, there is growing concern for typically developing sibling (TDS) outcomes.
The aim of the study was to examine whether caregiver burden, parenting style, and sibling relationships in families raising a CWD are associated with cooperative and externalizing behaviors in TDS.
This correlational study included 189 families raising both a CWD and a TDS. Multilevel modeling was used to identify which variables were most predictive of TDS outcomes and if there were parent gender effects.
Authoritative parenting was positively associated with cooperative behaviors. Authoritarian parenting was positively associated with externalizing behaviors. Multilevel modeling revealed caregiver burden was a significant predictor of sibling behaviors in the first model. When parenting style was added as a predictor, it was also significant. When sibling relationships were added as predictors, they were significant predictors for both cooperative and externalizing TDS behaviors; however, caregiver burden was no longer significant. Authoritarian parenting significantly predicted externalizing behaviors, and authoritative parenting was significantly related to cooperative behaviors.
In families raising a CWD, positive sibling relationships may help negate the effects of caregiver burden and are more predictive of TDS outcomes than some parenting practices.
在全球范围内，在家中养育残疾儿童（CWD）的情况正在增加。由于照顾者的负担和护理的复杂性，人们越来越关注正常发育的兄弟姐妹（TDS）的结果。
本研究旨在探讨在养育 CWD 的家庭中，照顾者负担、育儿风格和兄弟姐妹关系是否与 TDS 的合作和外化行为有关。
这是一项相关性研究，包括 189 个同时养育 CWD 和 TDS 的家庭。使用多层次模型来确定哪些变量最能预测 TDS 的结果，以及是否存在父母性别效应。
权威型育儿与合作行为呈正相关。专制型育儿与外化行为呈正相关。多层次模型显示，在第一个模型中，照顾者负担是兄弟姐妹行为的一个重要预测因素。当加入育儿风格作为预测因素时，它也是显著的。当兄弟姐妹关系作为预测因素加入时，它们是合作和外化 TDS 行为的显著预测因素；然而，照顾者负担不再显著。专制型育儿显著预测外化行为，而权威型育儿与合作行为显著相关。
在养育 CWD 的家庭中，积极的兄弟姐妹关系可能有助于减轻照顾者负担的影响，并且比某些育儿实践更能预测 TDS 的结果。
