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为患有自闭症谱系障碍儿童的单身母亲提供的临时护理服务

Respite Care for Single Mothers of Children with Autism Spectrum Disorders.

作者信息

Dyches Tina Taylor, Christensen Ruthann, Harper James M, Mandleco Barbara, Roper Susanne Olsen

机构信息

McKay School of Education, 301 McKay Building, Brigham Young University, Provo, UT, 84602, USA.

Department of Counseling Psychology and Special Education, 340 McKay Building, Brigham Young University, Provo, UT, 84602, USA.

出版信息

J Autism Dev Disord. 2016 Mar;46(3):812-24. doi: 10.1007/s10803-015-2618-z.

Abstract

Single mothers of children with autism spectrum disorders are rarely studied, yet they may experience unique stressors. Researchers asked 122 single mothers to complete questionnaires concerning respite care, daily hassles/uplifts, depression, and caregiver burden. More than half (59.8%) accessed respite care, which was provided for 1 h per day, often by multiple sources (41%), such as grandparents and community agencies; most were satisfied with this care. Most mothers (77%) were at risk for clinical depression. While uplifts were negatively correlated with depression, hassles and caregiver burden were positively correlated with depression. Respite care was positively related to daily uplifts, and uplifts mediated the relationship between respite care and depression. Recommendations for researchers, policymakers, and school personnel are offered.

摘要

很少有研究关注患有自闭症谱系障碍儿童的单身母亲,但她们可能会经历独特的压力源。研究人员要求122位单身母亲填写有关临时护理、日常烦恼/愉悦之事、抑郁和照顾者负担的问卷。超过一半(59.8%)的人获得了临时护理,这种护理每天提供1小时,通常来自多个来源(41%),如祖父母和社区机构;大多数人对这种护理感到满意。大多数母亲(77%)有临床抑郁症的风险。虽然愉悦之事与抑郁呈负相关,但烦恼和照顾者负担与抑郁呈正相关。临时护理与日常愉悦之事呈正相关,且愉悦之事在临时护理与抑郁之间的关系中起中介作用。文中还为研究人员、政策制定者和学校工作人员提供了建议。

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