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囊性纤维化患儿家长获得更多的教会支持。

Increased congregational support for parents of children with cystic fibrosis.

作者信息

Szczesniak Rhonda D, Zou Yuanshu, Wetzel J Denise, Krause Neal, Grossoehme Daniel H

机构信息

Division of Pulmonary Medicine, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, 3333 Burnet Avenue MLC2021, Cincinnati, OH, 45229, USA.

出版信息

J Relig Health. 2015 Apr;54(2):664-75. doi: 10.1007/s10943-014-9928-x.

DOI:10.1007/s10943-014-9928-x
PMID:25119628
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4324124/
Abstract

Positive health outcomes are related to adults' religious congregational participation. For parents of children with chronic disease, structured daily care routines and/or strict infection control precautions may limit participation. For this exploratory study, we examined the relationship between congregational support and religious coping by parents of children with cystic fibrosis (CF) compared to parents for whom child health issues were not significant stressors. CF parents reported higher levels of emotional support from congregation members and use of religious coping. Within-group differences were found for CF parents by denominational affiliation. Congregational support for parents dealing with child chronic disease is important.

摘要

积极的健康结果与成年人参与宗教集会有关。对于患有慢性病儿童的父母来说,结构化的日常护理程序和/或严格的感染控制预防措施可能会限制他们的参与。在这项探索性研究中,我们比较了囊性纤维化(CF)患儿的父母与那些孩子的健康问题并非重大压力源的父母,研究了教会支持与宗教应对之间的关系。CF患儿的父母报告称,会众成员给予了更高水平的情感支持,且他们更多地采用宗教应对方式。按教派归属对CF患儿的父母进行分组时发现了组内差异。教会对处理儿童慢性病的父母的支持很重要。

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本文引用的文献

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"I honestly believe god keeps me healthy so i can take care of my child": parental use of faith related to treatment adherence.“我真的相信上帝让我保持健康,这样我就能照顾我的孩子”:父母将信仰与治疗依从性联系起来。
J Health Care Chaplain. 2013;19(2):66-78. doi: 10.1080/08854726.2013.779540.
2
Congregational participation and supports for children and adults with disabilities: parent perceptions. congregational 参与和支持残疾儿童和成人:家长的看法。
Intellect Dev Disabil. 2013 Feb;51(1):48-61. doi: 10.1352/1934-9556-51.01.048.
3
We were chosen as a family: parents' evolving use of religion when their child has cystic fibrosis.当孩子患有囊性纤维化时,父母对宗教的不断变化的使用:家庭的选择。
J Relig Health. 2012 Dec;51(4):1347-58. doi: 10.1007/s10943-011-9477-5.
4
Religion and preventive service use: do congregational support and religious beliefs explain the relationship between attendance and utilization?宗教与预防保健服务的使用:会众支持和宗教信仰能否解释出席率与利用率之间的关系?
J Behav Med. 2011 Dec;34(6):462-76. doi: 10.1007/s10865-011-9318-8. Epub 2011 Feb 1.
5
Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic fibrosis.评估成人囊性纤维化患者的疾病披露情况:成人数据理解生活方式和转变(ADULT)调查 成人囊性纤维化患者的疾病披露情况。
BMC Pulm Med. 2010 Sep 10;10:46. doi: 10.1186/1471-2466-10-46.
6
Parents' religious coping styles in the first year after their child's cystic fibrosis diagnosis.孩子被诊断出患有囊性纤维化后的第一年里父母的宗教应对方式。
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7
We can handle this: parents' use of religion in the first year following their child's diagnosis with cystic fibrosis.我们可以应对此事:父母在孩子被诊断出患有囊性纤维化后的第一年对宗教的运用。
J Health Care Chaplain. 2010;16(3-4):95-108. doi: 10.1080/08854726.2010.480833.
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Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives.手机干预以提高依从性:囊性纤维化护理团队、患者和家长的观点。
Pediatr Pulmonol. 2010 Feb;45(2):157-64. doi: 10.1002/ppul.21164.
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Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.研究电子数据采集(REDCap)——一种用于提供转化研究信息学支持的元数据驱动方法和工作流程。
J Biomed Inform. 2009 Apr;42(2):377-81. doi: 10.1016/j.jbi.2008.08.010. Epub 2008 Sep 30.
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Relationship Between Religious Coping and Suicidal Behaviors Among African American Adolescents.非裔美国青少年的宗教应对方式与自杀行为之间的关系。
J Black Psychol. 2006 Aug;32(3):366-389. doi: 10.1177/0095798406290466.