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[先天性心脏病患儿家长教育项目]

[Educational program for congenital cardiopathy children's parents].

作者信息

Pino Armijo Paola, Valdés Valenzuela Carmen Gloria, Fajuri Moyano Paula, Garrido Villablanca Olga, Castillo Moya Andrés

机构信息

Área materno-infantil, Hospital Clínico UC Christus.

Unidad de Paciente Crítico Pediátrica, Hospital Clínico UC Christus.

出版信息

Arch Argent Pediatr. 2014 Oct;112(5):451-6. doi: 10.5546/aap.2014.451.

Abstract

The children with congenital heart disease are faced with a series of procedures in chronological sequence. Throughout this process the infant and their parents require timely information, education and preparation for discharge. However, the information about each of the aspects affected by the disease is usually addressed in isolation by different professionals and not as part of a comprehensive educational program. The educational program should consider the nature of the disease, of the users and educators during their planning and must be implemented by a multidisciplinary team, continuously during hospitalization and follow-up, using various teaching methods available, and incorporating the minimum content described in the literature. The objective of this review is to identify the dimensions and key elements to consider in the design of an educational program for parents of children with congenital heart disease based on the model of Kaufman.

摘要

患有先天性心脏病的儿童要按时间顺序接受一系列治疗程序。在整个过程中,婴儿及其父母需要及时获取信息、接受教育并为出院做好准备。然而,关于该疾病所影响的各个方面的信息通常由不同专业人员单独提供,而非作为综合教育计划的一部分。教育计划在规划时应考虑疾病的性质、使用者和教育者的情况,并且必须由多学科团队在住院期间及随访过程中持续实施,采用各种可用的教学方法,并纳入文献中描述的最低限度内容。本综述的目的是根据考夫曼模型确定为先天性心脏病患儿家长设计教育计划时要考虑的维度和关键要素。

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