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评估接受心脏手术的先天性心脏病患儿家长教育项目的工具。

Instrument to assess educational programs for parents of children with congenital heart disease undergoing cardiac surgery.

作者信息

Pino Armijo Paola, Ramírez León Muriel, Clavería Rodríguez Cristian

机构信息

Área Materno Infantil, Subdirección de Enfermería, Hospital Clínico UC CHRISTUS, Santiago de Chile.

Escuela de Enfermería, Pontificia Universidad Católica de Chile.

出版信息

Arch Argent Pediatr. 2017 Oct 1;115(5):439-445. doi: 10.5546/aap.2017.eng.439.

DOI:10.5546/aap.2017.eng.439
PMID:28895690
Abstract

OBJETIVE

To design and validate an instrument to assess the relevance of educational programs for parents of children with congenital heart disease (CHD) undergoing cardiac surgery.

MATERIAL AND METHOD

In October 2011, an instrument was designed based on Kaufman's model and on the bibliography, and a survey was developed in the form of a checklist with 32 close-ended questions about received education and desired education, categorized into 5 items: educator, time, place, means, and content. The survey was reviewed by 4 academic professionals and 9 experts in the care of children with CHD, and the checklist was extended to include 42 close-ended questions and 5 open questions. The instrument was administered on the day before discharge to the parents of children with CHD undergoing cardiac surgery at the Department of Pediatrics between February and August 2013. The survey was self-administered by the first participants and administered by the investigator among the remaining participants.

RESULTS

Fifty-five children met inclusion criteria; a total of 60 parents took part in the study. Agreement was observed between received education and desired education, which was statistically significant only in terms of education provided by a cardiologist (p= 0.000, K= 0.659) and in the hall (p= 0.000, K= 0.655). Statistically significant differences were observed between the 19 self-administered surveys and the 41 surveys administered by the investigator. Among the latter, a greater level of completion was observed for all items.

CONCLUSION

A validated instrument was developed to assess the relevance of educational programs for parents of children with CHD undergoing cardiac surgery. This survey should be administered by a health care provider for a better understanding of information.

摘要

目的

设计并验证一种工具,以评估针对接受心脏手术的先天性心脏病(CHD)患儿家长的教育项目的相关性。

材料与方法

2011年10月,基于考夫曼模型和参考文献设计了一种工具,并以清单形式编制了一份调查问卷,其中包含32个关于所接受教育和期望教育的封闭式问题,分为5个项目:教育者、时间、地点、方式和内容。该调查问卷由4名学术专业人员和9名CHD患儿护理专家进行评审,清单扩展为包括42个封闭式问题和5个开放式问题。2013年2月至8月期间,在儿科对接受心脏手术的CHD患儿家长在出院前一天发放该工具。最初的参与者自行填写调查问卷,其余参与者由调查员协助填写。

结果

55名儿童符合纳入标准;共有60名家长参与了研究。观察到所接受教育与期望教育之间存在一致性,仅在心脏病专家提供的教育方面(p = 0.000,K = 0.659)以及在大厅方面(p = 0.000,K = 0.655)具有统计学意义。在19份自行填写的调查问卷和41份由调查员协助填写的调查问卷之间观察到统计学显著差异。在后者中,所有项目的完成程度更高。

结论

开发了一种经过验证的工具,以评估针对接受心脏手术的CHD患儿家长的教育项目的相关性。该调查问卷应由医疗保健提供者发放,以便更好地了解信息。

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