van Houtum Lieke, Rijken Mieke, Heijmans Monique, Groenewegen Peter
Netherlands Institute for Health Services Research (NIVEL), PO Box 1568, 3500 BN, Utrecht, Netherlands,
Ann Behav Med. 2015 Apr;49(2):221-9. doi: 10.1007/s12160-014-9649-0.
Self-management is widely accepted as an essential component of chronic care. Nevertheless, little is known about patients' perceptions of self-management.
This study aims to explore which self-management tasks and support needs people with chronic illness perceive for themselves, and to establish whether these tasks and support needs are disease specific.
A nationwide representative sample of 2,064 people with chronic disease filled in the Patient Assessment of Self-management Tasks questionnaire.
Many respondents perceive self-management tasks in the daily management of their condition, although few indicate a need for support. Respondents who feel a need for support in one aspect of self-management are likely to feel a need for support in other aspects as well. Type of disease has a small effect on self-management tasks and even smaller on support needs.
Although the self-management tasks patients perceive may be partly disease specific, self-management support does not necessarily need to be disease specific.
自我管理被广泛认为是慢性病护理的重要组成部分。然而，对于患者对自我管理的看法却知之甚少。
本研究旨在探讨慢性病患者认为自己有哪些自我管理任务和支持需求，并确定这些任务和支持需求是否因疾病而异。
对2064名慢性病患者进行全国代表性抽样，让他们填写自我管理任务患者评估问卷。
许多受访者意识到在日常病情管理中有自我管理任务，尽管很少有人表示需要支持。在自我管理的一个方面感到需要支持的受访者，在其他方面也可能感到需要支持。疾病类型对自我管理任务的影响较小，对支持需求的影响更小。
尽管患者意识到的自我管理任务可能部分因疾病而异，但自我管理支持不一定需要因疾病而异。
