Netherlands Institute for Health Services Research, Utrecht, Netherlands.
Red de investigación en servicios de salud en enfermedades crónicas, Madrid, Spain.
Front Public Health. 2022 May 11;10:842462. doi: 10.3389/fpubh.2022.842462. eCollection 2022.
For many chronically ill patients self-management of their disease is difficult. This may be especially true for people with limited health literacy as they are faced with additional challenges in the day-to-day management of their disease. Research has shown that self-management support is most effective when tailored to the needs and preferences of patients. Therefore, this study explores the preferences regarding self-management outcomes of chronically ill patients with limited health literacy.
A total of 35 patients with limited health literacy were invited to a concept-mapping procedure consisting of two card sorting tasks. Patients ranked 60 outcomes, which are often found in literature in relation to self-management, to the level that was important for themselves. Means were calculated for each outcome and domain, and differences within the group were analyzed.
For patients with limited health literacy, satisfaction with care is the most important outcome domain. This domain includes overall satisfaction, the communication with health care providers, the provision of information and trust. At an outcome level, outcomes related to symptom management and improving competences to self-management scored very high. No differences between patient groups for age and sex were found.
Chronically ill patients with limited health literacy prefer a wide variety of outcomes for their self-management. Next to health related outcomes, patients mostly prefer to work on their competences for self-management. For health care professionals, acting on these patient preferences and building a solid relationship will enhance successful self-management.
对于许多慢性病患者来说，自我管理疾病是困难的。对于健康素养有限的人来说，这可能尤其如此，因为他们在日常疾病管理中面临额外的挑战。研究表明，当自我管理支持根据患者的需求和偏好进行定制时，效果最佳。因此，本研究探讨了健康素养有限的慢性病患者对自我管理结果的偏好。
共邀请 35 名健康素养有限的患者参加概念映射程序，该程序包括两项卡片分类任务。患者将 60 种与自我管理相关的结果按照对自己重要的程度进行排序。为每个结果和领域计算平均值，并分析组内的差异。
对于健康素养有限的患者来说，对护理的满意度是最重要的结果领域。该领域包括总体满意度、与医疗保健提供者的沟通、信息提供和信任。在结果层面上，与症状管理和提高自我管理能力相关的结果得分非常高。未发现年龄和性别组之间存在差异。
健康素养有限的慢性病患者对自我管理的结果有广泛的偏好。除了与健康相关的结果外，患者还大多希望提高自我管理的能力。对于医疗保健专业人员来说，关注这些患者的偏好并建立稳固的关系将有助于成功的自我管理。
