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“我们必须趁还来得及的时候努力怀上这个孩子”:艾滋病毒感染者与医疗服务提供者就生育意愿进行沟通时错失的机会

"We have to try and have this child before it is too late": missed opportunities in client-provider communication on reproductive intentions of people living with HIV.

作者信息

Mindry D L, Crankshaw T L, Maharaj P, Munthree C, Letsoalo T, Milford C, Greener R M, Rambally L, Carpenter S, Smit J A

机构信息

a Center for Culture and Health , Semel Institute, University of California , Los Angeles , CA , USA.

出版信息

AIDS Care. 2015;27(1):25-30. doi: 10.1080/09540121.2014.951311. Epub 2014 Sep 9.

Abstract

Men and women living with HIV with access to ARVs are living longer, healthier lives that can and often do include bearing children. Children occupy a key space in men and women's personal and social lives and often play a fundamental role in maintaining these relationships, irrespective of illness concerns. Couples living with HIV need to balance prevention needs and ill-health while trying to maintain healthy relationships. Health-care providers serving the reproductive needs of HIV-affected couples need to consider the social and relational factors shaping reproductive decisions associated with periconception risk behaviors. This paper based on qualitative research at three hospital sites in eThekwini District, South Africa, investigates the childbearing intentions and needs of people living with HIV (PLHIV), and the attitudes and experiences of health-care providers serving the reproductive needs of PLHIV, and client and provider views and knowledge of safer conception. This research revealed that personal, social, and relationship dynamics shape the reproductive decisions of PLHIV, and "unplanned" pregnancies are not always unintended. Additionally, conception desires are not driven by the number of living children; rather clients are motivated by whether or not they have had any children with their current partner/spouse. Providers should consider the relationship status of clients in discussions about childbearing desires and intentions. Although many providers recognize the complex social realities shaping their clients' reproductive decisions, they have outdated information on serving their reproductive needs. Appropriate training to enable providers to better understand the relationship and social realities surrounding their clients' childbearing intentions is required and should be used as a platform for couples to work together with providers toward safer conception. The adoption of a more participatory approach should be employed to equalize client-provider power dynamics and to ensure clients are more involved in decision-making about reproduction and conception.

摘要

能够获得抗逆转录病毒药物治疗的艾滋病毒感染者,无论男女,都能活得更长久、更健康,而且他们的生活往往包括生育子女。孩子在男女的个人生活和社会生活中占据着关键位置,并且通常在维系这些关系中发挥着重要作用,而不受疾病因素的影响。感染艾滋病毒的夫妻在努力维持健康关系的同时,需要平衡预防需求和健康问题。为感染艾滋病毒的夫妻提供生殖保健服务的医疗服务提供者,需要考虑那些影响与受孕前风险行为相关的生殖决策的社会和关系因素。本文基于在南非伊泰夸尼地区三个医院进行的定性研究,调查了艾滋病毒感染者(PLHIV)的生育意愿和需求,以及为感染艾滋病毒的夫妻提供生殖保健服务的医疗服务提供者的态度和经历,以及服务对象和提供者对安全受孕的看法和了解。这项研究表明,个人、社会和关系动态因素塑造了艾滋病毒感染者的生殖决策,而且“意外”怀孕并不总是意料之外的。此外,受孕意愿并非由在世子女的数量驱动;相反,服务对象的动机是他们是否与现任伴侣/配偶育有子女。在讨论生育意愿和打算时,提供者应考虑服务对象的关系状况。尽管许多提供者认识到影响其服务对象生殖决策的复杂社会现实,但他们在满足服务对象生殖需求方面的信息却过时了。需要进行适当培训,使提供者能够更好地理解围绕其服务对象生育意愿的关系和社会现实,并且应将此作为夫妻与提供者共同努力实现更安全受孕的平台。应采用更具参与性的方法来平衡服务对象与提供者之间的权力动态,并确保服务对象更多地参与到关于生育和受孕的决策中。

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