Feragen Kristin Billaud, Stock Nicola Marie, Kvalem Ingela Lundin
Cleft Palate Craniofac J. 2015 Sep;52(5):555-73. doi: 10.1597/14-063. Epub 2014 Sep 11.
Explore psychological functioning in adolescents with a cleft at age 16 from a broad perspective, including cognitive, emotional, behavioral, appearance-related, and psychosocial adjustment. High-risk groups were identified within each area of adjustment to investigate whether vulnerable adolescents were found across domains or whether risk was limited to specific areas of adjustment.
Cross-sectional data based on psychological assessments at age 16 (N = 857). The effect of gender, cleft visibility, and the presence of an additional condition were investigated on all outcome variables. Results were compared with large national samples.
Hopkins Symptom Checklist, Harter Self-Perception Scale for Adolescents, Child Experience Questionnaire, and Satisfaction With Appearance scale.
The main factor influencing psychological adjustment across domains was gender, with girls in general reporting more psychological problems, as seen in reference groups. The presence of an additional condition also negatively affected some of the measures. No support was found for cleft visibility as a risk factor except for dissatisfaction with appearance. Correlation analyses of risk groups seem to point to an association between social and emotional risk and between social risk and dissatisfaction with appearance. Associations between other domains were found to be weak.
The results point to areas of both risk and strength in adolescents born with a cleft lip and/or palate. Future research should investigate how protective factors could counteract potential risk in adolescents with a cleft.
从广泛的角度探讨16岁唇腭裂青少年的心理功能,包括认知、情绪、行为、外貌相关以及心理社会适应等方面。在每个适应领域内确定高危群体,以调查脆弱青少年是在各个领域都存在,还是风险仅限于特定的适应领域。
基于16岁时心理评估的横断面数据(N = 857)。研究了性别、腭裂可见度和是否存在其他病症对所有结果变量的影响。将结果与全国大型样本进行比较。
霍普金斯症状清单、青少年哈特自我认知量表、儿童经历问卷和外貌满意度量表。
影响各领域心理适应的主要因素是性别,与参照组一样,总体上女孩报告的心理问题更多。存在其他病症也对一些测量指标产生了负面影响。除了对外貌不满意外,未发现腭裂可见度是一个风险因素。对高危群体的相关分析似乎表明社交和情绪风险之间以及社交风险和对外貌不满意之间存在关联。发现其他领域之间的关联较弱。
结果指出了唇裂和/或腭裂青少年存在风险和优势的领域。未来的研究应调查保护因素如何抵消唇腭裂青少年的潜在风险。