Gale C A
J Pediatr Health Care. 1989 Jan-Feb;3(1):20-7. doi: 10.1016/0891-5245(89)90045-x.
There are approximately 750,000 children in the United States with a severe chronic illness. The organization of health services for these children is characterized by diversity, fragmentation, and high expense. Moreover, the sources of financial support for this care typically leave many gaps in coverage. The families of these children face many years of mounting medical bills with little help in sight. A need exists for the establishment of a national policy that will provide an organized system of health care for the nation's chronically ill children. This policy must address current inadequacies and provide comprehensive ongoing care for these children and their families.
美国约有75万名患有严重慢性疾病的儿童。为这些儿童提供的医疗服务组织呈现出多样化、分散化且费用高昂的特点。此外，这种护理的资金支持来源通常在覆盖范围上存在许多缺口。这些儿童的家庭面临着多年不断增加的医疗费用，而且看不到什么帮助。有必要制定一项国家政策，为全国患有慢性疾病的儿童提供一个有组织的医疗保健系统。这项政策必须解决当前的不足之处，并为这些儿童及其家庭提供全面的持续护理。
