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患者报告结局测量信息系统的一次体验:利弊与未解决的问题

An experience with the Patient-Reported Outcomes Measurement Information System: pros and cons and unanswered questions.

作者信息

Badger Terry A, Heitkemper Margaret, Lee Kathryn A, Bruner Deborah Watkins

机构信息

Division of Community and Health Systems Science, College of Nursing, Department of Psychiatry, Tucson, AZ.

Department of Biobehavioral Nursing and Health Systems, University of Washington, Seattle, WA.

出版信息

Nurs Outlook. 2014 Sep-Oct;62(5):332-8. doi: 10.1016/j.outlook.2014.06.009. Epub 2014 Jul 10.

DOI:10.1016/j.outlook.2014.06.009
PMID:25218082
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4167407/
Abstract

The goal of the Patient-Reported Outcomes Measurement Information System (PROMIS) is to create efficient, reliable, and valid assessments of adult and child health. The nursing science literature in which PROMIS measures are used is rapidly expanding. Investigators have been encouraged to consider the integration of PROMIS measures into both descriptive studies and clinical trials. Doing this has created opportunities and challenges for investigators. This article highlights three projects to show the perspectives of nurse scientists who incorporated PROMIS measures into their research. The first project describes advantages of PROMIS to allow for comparisons of a study population with a national sample and to compliment legacy measures. The second project examines issues in the translation of tools for region-specific Hispanic populations. The third project provides a perspective on the use of PROMIS measures to capture cancer-related fatigue and to develop new components of a sexual function scale. As indicated by these three examples, nurse scientists can contribute an important role in moving the PROMIS initiative forward. Results from these types of projects also move symptom science forward within a more interdisciplinary approach to common measures of interest.

摘要

患者报告结局测量信息系统(PROMIS)的目标是创建对成人和儿童健康的高效、可靠且有效的评估。使用PROMIS测量方法的护理科学文献正在迅速扩展。研究人员受到鼓励,考虑将PROMIS测量方法纳入描述性研究和临床试验。这样做给研究人员带来了机遇和挑战。本文重点介绍了三个项目,以展示将PROMIS测量方法纳入其研究的护理科学家的观点。第一个项目描述了PROMIS的优势,即能够将研究人群与全国样本进行比较,并补充传统测量方法。第二个项目探讨了针对特定地区西班牙裔人群的工具翻译问题。第三个项目提供了关于使用PROMIS测量方法来捕捉癌症相关疲劳以及开发性功能量表新组件的观点。正如这三个例子所示,护理科学家可以在推动PROMIS计划向前发展方面发挥重要作用。这类项目的结果也以一种更跨学科的方法推进了针对共同感兴趣指标的症状科学。

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本文引用的文献

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Sex hormones in the modulation of irritable bowel syndrome.性激素对肠易激综合征的调节作用
World J Gastroenterol. 2014 Mar 14;20(10):2433-48. doi: 10.3748/wjg.v20.i10.2433.
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Conditioned pain modulation in women with irritable bowel syndrome.肠易激综合征女性的条件性疼痛调制
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Method of administration of PROMIS scales did not significantly impact score level, reliability, or validity.给药方式对 PROMIS 量表的评分水平、信度或效度没有显著影响。
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Comorbidities in patients with irritable bowel syndrome with constipation or chronic idiopathic constipation: a review of the literature from the past decade.患有便秘型肠易激综合征或慢性特发性便秘患者的合并症:对过去十年文献的综述。
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7
Development of the NIH PROMIS ® Sexual Function and Satisfaction measures in patients with cancer.在癌症患者中开发 NIH PROMIS ® 性功能和满意度测量工具。
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8
Item banks for measuring emotional distress from the Patient-Reported Outcomes Measurement Information System (PROMIS®): depression, anxiety, and anger.用于测量患者报告结局测量信息系统(PROMIS®)情感困扰的项目库:抑郁、焦虑和愤怒。
Assessment. 2011 Sep;18(3):263-83. doi: 10.1177/1073191111411667. Epub 2011 Jun 21.
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Subtypes of irritable bowel syndrome based on abdominal pain/discomfort severity and bowel pattern.基于腹痛/不适严重程度和排便模式的肠易激综合征亚型。
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