患者报告结局测量信息系统（PROMIS）：用于测量自我报告的健康状况和生活质量的高效、标准化工具。
Patient-Reported Outcomes Measurement Information System (PROMIS): efficient, standardized tools to measure self-reported health and quality of life.
作者信息
Bevans Margaret, Ross Alyson, Cella David
机构信息
Nursing Research and Translational Science, Nursing Department, National Institutes of Health Clinical Center, Bethesda, MD.
Nursing Research and Translational Science, Nursing Department, NIH Clinical Center, Bethesda, MD.
出版信息
Nurs Outlook. 2014 Sep-Oct;62(5):339-45. doi: 10.1016/j.outlook.2014.05.009. Epub 2014 Jun 12.
Abstract
All nurses are interested in the effects of diseases and treatments on individuals. Patient-reported outcome (PRO) measures are used to obtain self-reported information about symptoms, function, perceptions, and experiences. However, there are challenges to their use, including multiple measures of the same concept, widely varying quality, excessive length and complexity, and difficulty comparing findings across studies and conditions. To address these challenges, the National Institutes of Health funded the Patient-Reported Outcomes Measurement Information System (PROMIS), a web-based repository of valid and reliable PRO measures of health concepts relevant to clinician and researchers. Through the PROMIS Assessment Center, clinicians and researchers can access PRO measures, administer computerized adaptive tests, collect self-report data, and report instant health assessments. The purpose of this article was to summarize the development and validation of the PROMIS measures and to describe its current functionality as it relates to nursing science.
摘要
所有护士都对疾病及治疗对个体的影响感兴趣。患者报告结局（PRO）测量用于获取有关症状、功能、认知和体验的自我报告信息。然而，其使用存在挑战，包括同一概念的多种测量方法、质量差异很大、篇幅过长且复杂，以及难以在不同研究和条件下比较研究结果。为应对这些挑战，美国国立卫生研究院资助了患者报告结局测量信息系统（PROMIS），这是一个基于网络的库，包含与临床医生和研究人员相关的健康概念的有效且可靠的PRO测量方法。通过PROMIS评估中心，临床医生和研究人员可以获取PRO测量方法、进行计算机自适应测试、收集自我报告数据，并报告即时健康评估结果。本文的目的是总结PROMIS测量方法的开发与验证，并描述其与护理科学相关的当前功能。
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Psychol Assess. 2014 Jun;26(2):513-27. doi: 10.1037/a0035768. Epub 2014 Feb 17.
2
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3
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4
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6
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