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对囊性纤维化患者呼吸治疗的直接观察:亲子互动与医疗方案依从性相关。

Direct observation of respiratory treatments in cystic fibrosis: parent-child interactions relate to medical regimen adherence.

作者信息

Butcher Jennifer L, Nasr Samya Z

机构信息

Department of Pediatrics, University of Michigan Medical School and CS Mott Children's Hospital Department of Pediatrics, University of Michigan Medical School and CS Mott Children's Hospital

Department of Pediatrics, University of Michigan Medical School and CS Mott Children's Hospital Department of Pediatrics, University of Michigan Medical School and CS Mott Children's Hospital.

出版信息

J Pediatr Psychol. 2015 Jan-Feb;40(1):8-17. doi: 10.1093/jpepsy/jsu074. Epub 2014 Sep 17.

DOI:10.1093/jpepsy/jsu074
PMID:25236709
Abstract

OBJECTIVE

Use a standardized system to code parent-child interactions during respiratory treatments for cystic fibrosis (CF) and analyze relations between behaviors during treatments and medical regimen adherence.

METHODS

A total of 15 families (53% girls; M age = 8.9 years; SD = 1.8) had three respiratory treatments recorded in the home environment and coded. Families provided six 24-hr recalls of child medical regimen activities, and electronic airway clearance time was recorded over 3 months to measure medical regimen adherence.

RESULTS

Parent positive attention, instructions, and avoidance of negative statements were significantly related to child cooperation during respiratory treatments. Parental presence, positive attention, instructions, and child cooperation during treatments were related to higher respiratory adherence rates.

CONCLUSIONS

Direct observation methodology has led to effective nutritional adherence intervention for children with CF. These preliminary data demonstrate that an observational method could also be used to develop interventions to promote respiratory medication adherence.

摘要

目的

使用标准化系统对囊性纤维化(CF)呼吸治疗期间的亲子互动进行编码,并分析治疗期间的行为与医疗方案依从性之间的关系。

方法

共有15个家庭(女孩占53%;平均年龄=8.9岁;标准差=1.8)在家庭环境中记录并编码了三次呼吸治疗。家庭提供了六次对儿童医疗方案活动的24小时回忆,并且在3个月内记录了电子气道清除时间以衡量医疗方案依从性。

结果

父母的积极关注、指导以及避免负面陈述与呼吸治疗期间儿童的合作显著相关。父母的陪伴、积极关注、指导以及治疗期间儿童的合作与更高的呼吸治疗依从率相关。

结论

直接观察法已导致对CF儿童有效的营养依从性干预。这些初步数据表明,观察法也可用于开发促进呼吸药物依从性的干预措施。

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