日本年轻乳腺癌幸存者未满足的信息需求与生活质量
Unmet Information Needs and Quality of Life in Young Breast Cancer Survivors in Japan.
作者信息
Miyashita Mika, Ohno Shinji, Kataoka Akemi, Tokunaga Eriko, Masuda Norikazu, Shien Tadahiko, Kawabata Kimiko, Takahashi Miyako
机构信息
Author Affiliations: Division of Nursing Science, Graduate School of Biomedical and Health Sciences, Hiroshima University (Dr Miyashita); Clinical Cancer Institute, National Hospital Organization Kyushu Cancer Center, Fukuoka (Dr Ohno); Department of Breast and Endocrine Surgery, Toho University Omori Medical Center, Tokyo (Dr Kataoka); Department of Surgery and Science, Graduate School of Medical Sciences, Kyushu University, Fukuoka (Dr Tokunaga); Department of Surgery, Breast Oncology, National Hospital Organization Osaka National Hospital (Dr Masuda); Department of Breast and Endocrine Surgery, Okayama University Hospital (Dr Shien); Department of Nursing School of Health and Social Services, Saitama Prefectural University, Koshigaya (Dr Kawabata); and Cancer Survivorship Research Division, Center for Cancer Control and Information Services, National Cancer Center, Tokyo (Dr Takahashi), Japan.
出版信息
Cancer Nurs. 2015 Nov-Dec;38(6):E1-11. doi: 10.1097/NCC.0000000000000201.
BACKGROUND
Young breast cancer survivors have specific needs related to age. Clarifying the relationships between unmet information needs and quality of life (QOL) in young breast cancer survivors can contribute to constructing a support system to enhance QOL in patients.
OBJECTIVE
This study aimed to identify the unmet information needs and examine the relationships between unmet information needs and QOL in young breast cancer survivors in Japan.
METHODS
Participants completed an information needs questionnaire containing 26 items, the World Health Organization Quality of Life Instrument-Short Form (WHOQOL-BREF), and a demographic and medical information questionnaire.
RESULTS
Fifty participants (30.7%) were unsatisfied with "overall communication with medical professionals." The mean scores on all subscales of the WHOQOL-BREF of the participants who were satisfied with "overall communication with medical professionals" were significantly higher than those of the unsatisfied group. "follow-up tests," "treatment for recurrence of breast cancer," "strategies about communication with medical staff," and "nutrition" were significantly related with all subscales in the WHOQOL-BREF. "Secondary menopause caused by hormonal therapy" was significantly related with physical and psychological health.
CONCLUSIONS
Japanese young breast cancer survivors have unmet information needs, including age-specific issues. These unmet information needs are related to QOL. In particular, "overall communication with medical professionals," which is the most unmet information need, is related to QOL.
IMPLICATIONS FOR PRACTICE
Oncology nurses should teach patients communication skills, provide adequate information, and provide education and emotional support to medical professionals to improve QOL in young breast cancer survivors.
背景
年轻乳腺癌幸存者有与年龄相关的特定需求。阐明年轻乳腺癌幸存者未满足的信息需求与生活质量（QOL）之间的关系，有助于构建一个支持系统以提高患者的生活质量。
目的
本研究旨在确定日本年轻乳腺癌幸存者未满足的信息需求，并探讨未满足的信息需求与生活质量之间的关系。
方法
参与者完成一份包含26个项目的信息需求问卷、世界卫生组织生活质量简表（WHOQOL-BREF）以及一份人口统计学和医疗信息问卷。
结果
50名参与者（30.7%）对“与医疗专业人员的总体沟通”不满意。对“与医疗专业人员的总体沟通”满意的参与者在WHOQOL-BREF所有子量表上的平均得分显著高于不满意组。“随访检查”“乳腺癌复发的治疗”“与医护人员沟通的策略”以及“营养”与WHOQOL-BREF的所有子量表均显著相关。“激素治疗引起的继发性绝经”与身心健康显著相关。
结论
日本年轻乳腺癌幸存者存在未满足的信息需求，包括特定年龄问题。这些未满足的信息需求与生活质量相关。特别是，最未满足的信息需求“与医疗专业人员的总体沟通”与生活质量相关。
对实践的启示
肿瘤护士应教授患者沟通技巧，提供充分信息，并为医疗专业人员提供教育和情感支持，以提高年轻乳腺癌幸存者的生活质量。
Zotero 插件