Brédart Anne, Kop Jean-Luc, Fiszer Chavie, Sigal-Zafrani Brigitte, Dolbeault Sylvie
Psycho-Oncology Unit, Supportive Care Department, Institute Curie, Paris, France.
Psychology Institute, LPPS EA 4057, University Paris Descartes, Paris, France.
Psychooncology. 2015 Dec;24(12):1670-8. doi: 10.1002/pon.3836. Epub 2015 May 15.
Information is a care priority in most breast cancer survivors (BCS). We assessed whether BCS information needs at 8 months after hospital cancer treatment could be related to their age, education level, perceived medical communication competence, satisfaction with care, attachment style, and self-esteem.
Of 426 BCS approached during the last week of treatment (T1), 85% completed the Medical Communication Competence Scale, European Organisation for Research and Treatment of Cancer Satisfaction with Care Questionnaire, Rosenberg's Self-Esteem Scale and Experiences in Close Relationships Scale. The Hospital Anxiety and Depression Scale and the Supportive Care Needs Survey were completed at T1 and again 8 months later (T2) with a 66% (n = 283) response rate.
Baseline respondents' median (range) age was 56 years (23-86 years). Information needs decreased over time, although some persisted. Multivariate regression analyses evidenced overall higher information needs at T2 in younger BCS and in those dissatisfied with the information provided at T1. Specifically, in younger BCS, higher information needs were related to lower satisfaction with doctors' availability, and in older BCS, they were related to higher self-perceived competence in information giving, lower self-perceived competence in information seeking, and lower satisfaction with doctors' information provision. Psychological distress was strongly related to information needs. Education, BCS attachment style, and self-esteem were not associated with information needs.
In order to enhance supportive care for BCS, younger BCS should be provided with more time to address all their concerns and older BCS should be encouraged to express their specific desires for information.
信息是大多数乳腺癌幸存者（BCS）的护理重点。我们评估了医院癌症治疗8个月后BCS的信息需求是否与她们的年龄、教育水平、感知到的医疗沟通能力、护理满意度、依恋风格和自尊有关。
在治疗最后一周（T1）接触的426名BCS中，85%完成了医疗沟通能力量表、欧洲癌症研究与治疗组织护理满意度问卷、罗森伯格自尊量表和亲密关系经历量表。医院焦虑抑郁量表和支持性护理需求调查在T1时完成，8个月后（T2）再次完成，回复率为66%（n = 283）。
基线受访者的年龄中位数（范围）为56岁（23 - 86岁）。信息需求随时间减少，尽管有些需求仍然存在。多变量回归分析表明，T2时年轻的BCS以及对T1提供的信息不满意的BCS总体信息需求更高。具体而言，在年轻的BCS中，更高的信息需求与对医生可及性的较低满意度有关，而在年长的BCS中，它们与更高的自我感知信息给予能力、更低的自我感知信息寻求能力以及对医生信息提供的较低满意度有关。心理困扰与信息需求密切相关。教育、BCS的依恋风格和自尊与信息需求无关。
为了加强对BCS的支持性护理，应该给年轻的BCS更多时间来解决她们所有的担忧，并且应该鼓励年长的BCS表达她们对信息的具体需求。
