Effendy Christantie, Vernooij-Dassen Myrra, Setiyarini Sri, Kristanti Martina Sinta, Tejawinata Sunaryadi, Vissers Kris, Engels Yvonne
School of Nursing, Medical Faculty, Universitas Gadjah Mada, Yogyakarta, Indonesia; Scientific Institute for Quality of Healthcare, Radboudumc, Nijmegen, the Netherlands.
Psychooncology. 2015 May;24(5):585-91. doi: 10.1002/pon.3701. Epub 2014 Oct 7.
Being involved in caring for family members during illness is part of the Indonesian culture, even during hospitalization. It is unknown which factors influence the quality of life (QoL) of family members taking care of their loved ones. The present study aims to identify factors influencing the QoL of family caregivers of hospitalized patients with cancer in Indonesia.
A cross-sectional survey was performed. Data were collected in a general hospital in Yogyakarta from September to December 2011. Family caregivers of patients with cancer were invited to participate. Regression analysis was used to determine which aspects of caring and which demographic characteristics influenced their QoL. The Caregiver QoL Index-Cancer questionnaire was used to measure the QoL.
One hundred of 120 invited caregivers (83%) completed the questionnaire. Being involved in psychological issues in caring (β = 0.374; p = 0.000), younger age (β = -0.282; p = 0.003), no previous caring experience (β = -0.301; p = 0.001), and not being the spouse (β = -0.228; p = 0.015) negatively influenced the QoL and explained 31% of the variation (adjusted R(2) = 0.312; F = 12.24; p = 0.000). Gender, education level, and time spent on caring did not influence the QoL of family caregivers.
Our findings identified modifiable factors such as dealing with psychological issues and lack of experience in caring that negatively influenced the QoL of family caregivers. These factors are potential targets for intervention strategies. Education and intervention programs focusing on dealing with psychological problems in cancer care might improve the QoL of both patients and their families.
在印度尼西亚文化中，即使在住院期间，参与照顾患病的家庭成员也是其中一部分。目前尚不清楚哪些因素会影响照顾亲人的家庭成员的生活质量（QoL）。本研究旨在确定影响印度尼西亚住院癌症患者家庭照顾者生活质量的因素。
进行了一项横断面调查。2011年9月至12月在日惹的一家综合医院收集数据。邀请癌症患者的家庭照顾者参与。采用回归分析来确定照顾的哪些方面以及哪些人口统计学特征会影响他们的生活质量。使用照顾者生活质量指数-癌症问卷来测量生活质量。
120名受邀照顾者中有100名（83%）完成了问卷。参与照顾中的心理问题（β = 0.374；p = 0.000）、年龄较小（β = -0.282；p = 0.003）、以前没有照顾经验（β = -0.301；p = 0.001）以及不是配偶（β = -0.228；p = 0.015）对生活质量有负面影响，并解释了31%的变异（调整后R² = 0.312；F = 12.24；p = 0.000）。性别、教育水平和照顾时间并未影响家庭照顾者的生活质量。
我们的研究结果确定了一些可改变的因素，如处理心理问题和缺乏照顾经验，这些因素对家庭照顾者的生活质量有负面影响。这些因素是干预策略的潜在目标。专注于处理癌症护理中心理问题的教育和干预项目可能会改善患者及其家庭的生活质量。
