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护理非癫痫性发作患者的质量改进机会。

Quality improvement opportunities in caring for patients with nonepileptic seizures.

作者信息

Chen Jasper J, Thakur Devendra S, Bujarski Krzysztof A, Jobst Barbara C, Kobylarz Erik J, Thadani Vijay M

机构信息

Behavioral Health Services, Cheyenne Regional Medical Center, Cheyenne, WY 82001, USA ; Department of Psychiatry, Geisel School of Medicine at Dartmouth College, Dartmouth-Hitchcock Medical Center, Lebanon, NH 03756, USA.

Department of Psychiatry, Geisel School of Medicine at Dartmouth College, Dartmouth-Hitchcock Medical Center, Lebanon, NH 03756, USA.

出版信息

Case Rep Psychiatry. 2014;2014:201575. doi: 10.1155/2014/201575. Epub 2014 Sep 9.

Abstract

Background. Patients with nonepileptic seizures (NES) are challenging to treat for myriad reasons. Often patients may be misdiagnosed with having epilepsy and then may suffer unintended consequences of treatment side effects with antiepileptic medication. In addition, patients may be maligned by health care providers due to a lack of ownership by both psychiatrists and neurologists and a dearth of dedicated professionals who are able to effectively treat and reduce severity and frequency of symptoms. Aims of Case Report. Many psychiatrists and neurologists are unaware of the extent of the barriers to care faced by patients with NES (PWNES) and the degree of perception of maltreatment or lack of therapeutic alliance at various stages of their care, including medical workup, video-EEG monitoring, and follow-up plans. We present the case of a patient with NES who experienced numerous barriers as well as incoordination to her care despite being offered a breadth of resources and discuss the quality improvement opportunities that may exist to improve care of patients with NES. Conclusion. No known literature has documented the extensive barriers to care of PWNES in parallel to quality improvement opportunities for improving their care. We endeavor to contribute to the overall formulation and development of a clinical care pathway for PWNES.

摘要

背景。非癫痫性发作(NES)患者的治疗面临诸多挑战。患者常常可能被误诊为患有癫痫,进而可能承受抗癫痫药物治疗副作用带来的意外后果。此外,由于精神科医生和神经科医生都未充分承担责任,且缺乏能够有效治疗并减轻症状严重程度和发作频率的专业人员,患者可能受到医疗服务提供者的不公正对待。病例报告目的。许多精神科医生和神经科医生并不了解非癫痫性发作患者(PWNES)在就医过程中所面临障碍的程度,以及在包括医学检查、视频脑电图监测和后续治疗计划等各个治疗阶段中患者所感受到的被虐待或缺乏治疗联盟的程度。我们报告一例非癫痫性发作患者的病例,尽管为其提供了广泛的资源,但她在就医过程中仍遭遇了诸多障碍以及协调不善的情况,并讨论了可能存在的质量改进机会,以改善非癫痫性发作患者的治疗。结论。尚无已知文献记录非癫痫性发作患者在就医过程中面临的广泛障碍以及改善其治疗的质量改进机会。我们致力于为非癫痫性发作患者临床护理路径的整体制定和发展做出贡献。

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