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唐氏综合征青少年人群一年期间的生活状况。

Living conditions of an adolescent population with Down's syndrome during a one-year period.

作者信息

Goldstein H

机构信息

Department of Obstetrics and Gynecology Y, University Hospital, Copenhagen, Denmark.

出版信息

Res Dev Disabil. 1989;10(4):399-412. doi: 10.1016/0891-4222(89)90040-1.

Abstract

The living conditions during 1985 of 43 probands with Down's syndrome and 55 controls in the Danish county of Aarhus were investigated. All patients and all controls were born January 1, 1965 to December 31, 1970. The mean age on census day (December 31, 1985) was 17.6 years for probands and 17.4 years for controls. On census day, 30 (70%) of the probands lived in private homes, and 13 (30%) were institutionalized. Controls lived in various places of residence, but none were institutionalized. All probands and all controls had a daily occupation during at least part of 1985. Twenty-seven (63%) probands and 25 (46%) controls attended evening classes during 1985. All but one proband, and all controls participated in recreation activities or entertainment during 1985. More than 75% of the probands went outside their permanent residence at least twice a week (school/work excluded). During 1985, 9 (60%) out of 15 probands institutionalized received an average of 6.5 visits; an average of 20.1 phone calls were made to the staff to inquire about the well being of 7 (47%) out of 15 probands.

摘要

对丹麦奥胡斯郡43名唐氏综合征先证者和55名对照者在1985年的生活状况进行了调查。所有患者和对照者均出生于1965年1月1日至1970年12月31日。普查日(1985年12月31日)时,先证者的平均年龄为17.6岁,对照者为17.4岁。在普查日,30名(70%)先证者居住在私人住宅中,13名(30%)被安置在机构中。对照者居住在不同的住所,但无人被安置在机构中。所有先证者和对照者在1985年至少部分时间有日常工作。27名(63%)先证者和25名(46%)对照者在1985年参加了夜校课程。除一名先证者外,所有先证者和所有对照者在1985年都参加了娱乐活动或娱乐项目。超过75%的先证者每周至少两次离开其常住住所(不包括上学/工作)。在1985年,15名被安置在机构中的先证者中有9名(60%)平均接受了6.5次探访;向工作人员平均打了20.1次电话询问15名先证者中7名(47%)的健康状况。

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