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将替代医学作为积极选择的独家使用:丹麦多发性硬化症患者治疗假设的定性研究

Exclusive use of alternative medicine as a positive choice: a qualitative study of treatment assumptions among people with multiple sclerosis in denmark.

作者信息

Skovgaard Lasse, Pedersen Inge Kryger, Verhoef Marja

机构信息

Danish MS Society, Valby, Denmark, and the Department of Public Health, University of Copenhagen, Copenhagen, Denmark (LS); the Department of Sociology, University of Copenhagen, Copenhagen, Denmark (IKP); and NAFKAM, University of Tromsø, Tromsø, Norway (MV).

出版信息

Int J MS Care. 2014 Fall;16(3):124-31. doi: 10.7224/1537-2073.2013-010.

Abstract

BACKGROUND

A survey of members of the Danish MS Society revealed that a minority of MS patients choose to forgo all types of conventional treatment and use complementary and alternative medicine (CAM) exclusively. A qualitative follow-up study was performed to elucidate the choice of exclusive CAM use by exploring treatment assumptions among a group of exclusive CAM users.

METHODS

The study was based on a phenomenological approach. Semistructured in-depth qualitative interviews were conducted with 17 participants, using program theory as an analytical tool, and emerging themes were extracted from the data through meaning condensation.

RESULTS

Four themes characterized the participants' treatment assumptions: 1) conventional medicine contains chemical substances that affect the body in negative ways; 2) CAM treatments can strengthen the organism and make it more capable of resisting the impact of MS; 3) the patient's active participation is an important component of the healing process; 4) bodily sensations can be used to guide treatment selection.

CONCLUSIONS

Exclusive use of CAM by MS patients may reflect embracing CAM rather than a rejection of conventional medicine. Health-care practitioners, patient organizations, and health authorities within the MS field should be aware of possible changes in patients' attitudes toward both CAM and conventional treatment interventions.

摘要

背景

对丹麦多发性硬化症协会成员的一项调查显示,少数多发性硬化症患者选择放弃所有类型的传统治疗,而仅使用补充和替代医学(CAM)。进行了一项定性随访研究,通过探索一组仅使用CAM的患者的治疗假设,以阐明其选择仅使用CAM的原因。

方法

该研究基于现象学方法。对17名参与者进行了半结构化深入定性访谈,使用程序理论作为分析工具,并通过意义浓缩从数据中提取出新兴主题。

结果

四个主题表征了参与者的治疗假设:1)传统医学包含以负面方式影响身体的化学物质;2)CAM治疗可以增强机体,使其更有能力抵抗多发性硬化症的影响;3)患者的积极参与是治愈过程的重要组成部分;4)身体感觉可用于指导治疗选择。

结论

多发性硬化症患者仅使用CAM可能反映出对CAM的接受,而非对传统医学的排斥。多发性硬化症领域的医疗从业者、患者组织和卫生当局应意识到患者对CAM和传统治疗干预态度可能发生的变化。

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