Miller Daniel, Steele Gray Carolyn, Kuluski Kerry, Cott Cheryl
Bridgepoint Collaboratory for Research and Innovation, Bridgepoint Active Healthcare, 14 St. Matthews Rd., Toronto, ON, M4M 2B5, Canada,
Patient. 2015 Aug;8(4):293-9. doi: 10.1007/s40271-014-0095-7.
This commentary focuses on patient-reported measures as tools to support patient-centered care for patients with multiple chronic conditions (MCCs). We argue that those using patient-reported measures in care management or evaluation of services for MCC patients should do so in recognition of the challenges involved in treating them. MCC patient care is challenging because (1) it is difficult to specify the causes of particular symptoms; (2) assessment of many important symptoms relies on subjective report; and (3) patients require care from a variety of providers. Due to the multiple domains of health affected in single individuals, and the large variation in needs, care that is holistic and individualized (i.e. patient-centered) is appropriate for MCC patients. However, due to the afore-mentioned challenges, it is important to carefully consider what this care entails and how practical contexts shape it. Patient-centered care for MCC patients implies continuous, dialogic patient-provider relationships, and the formulation of coherent and adaptive multi-disciplinary care protocols. We identify two broadly defined contextual influences on the nature and quality of these processes and their outputs: (1) busy practice settings and (2) fragmented information technology. We then identify several consequences that may result from inattention to these contextual influences upon introduction of patient-reported measure applications. To maximize the benefits, and minimize the harms of patient-reported measure use, we encourage policy makers and providers to attend carefully to these and other important contextual factors before, during and after the introduction of patient-reported measure initiatives.
本评论聚焦于患者报告的测量指标,将其作为支持为患有多种慢性病(MCCs)的患者提供以患者为中心的护理的工具。我们认为,那些在MCC患者的护理管理或服务评估中使用患者报告的测量指标的人,在这样做时应认识到治疗这些患者所涉及的挑战。MCC患者的护理具有挑战性,原因如下:(1)难以明确特定症状的病因;(2)许多重要症状的评估依赖主观报告;(3)患者需要来自多种医疗服务提供者的护理。由于个体健康受到多个领域的影响,且需求差异很大,全面且个性化(即以患者为中心)的护理适用于MCC患者。然而,由于上述挑战,仔细考虑这种护理的具体内容以及实际情况如何塑造它很重要。对MCC患者的以患者为中心的护理意味着患者与医疗服务提供者之间持续的、对话式的关系,以及制定连贯且适应性强的多学科护理方案。我们确定了两个对这些过程及其结果的性质和质量有广泛定义的背景影响因素:(1)繁忙的医疗实践环境;(2)碎片化的信息技术。然后,我们确定了在引入患者报告的测量指标应用时,若不关注这些背景影响可能产生的若干后果。为了最大限度地提高患者报告的测量指标使用的益处,并将危害降至最低,我们鼓励政策制定者和医疗服务提供者在引入患者报告的测量指标举措之前、期间和之后,仔细关注这些以及其他重要的背景因素。