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多发性硬化症患者社会资本与生活质量之间的关系调查。

Investigation of relationship between social capital and quality of life in multiple sclerosis patients.

作者信息

Rimaz Shahnaz, Mohammad Kazem, Dastoorpoor Maryam, Jamshidi Ensiyeh, Majdzadeh Reza

机构信息

PHD student in Epidemiology, Research Center for Modeling in Health, Institute for Futures Studies in Health, Kerman University of Medical Sciences, Kerman/IRAN..

出版信息

Glob J Health Sci. 2014 Aug 15;6(6):261-72. doi: 10.5539/gjhs.v6n6p261.

Abstract

BACKGROUND

A large portion of existing medical research on Multiple Sclerosis patients focuses more on predicting medical variables (such as diagnosis, treatment) and individual variables such as the onset of disease, gender, etc., rather than broader socio-contextual factors. So that, here has yet been no study investigating factors such as social capital in Multiple Sclerosis patients.

AIM

The purpose of this study is determining the relation between social capital and quality of life in Multiple Sclerosis patients who referred to Iran Multiple Sclerosis Society in 2012.

METHOD

This cross-sectional study was conducted on 172 patients visiting Iran Multiple Sclerosis Society (Tehran) during 10 months via convenience samplings and face to face interviews. Tools for collecting data included World Bank's social capital integrated questionnaire (SC-IQ) and Multiple Sclerosis Quality of Life (MSQOL) -54.

RESULTS

The average age of patients was 34/8 ± 9/6. The analysis of the six dimensions of social capital questionnaire showed that the highest average score belonged to membership in groups and networks (63/3 ± 15/3) and the lowest one was about trust and solidarity (44/3 ± 13/7).The results of the regression model showed that there is a statistical significant and positive relation between social capital and quality of life (P > 0.0001).

CONCLUSION

Since the present study has been conducted for the first time in this vulnerable subpopulation of patients, its results can provide invaluable information regarding the quality of life and at the same time present hypotheses about the contributing factors.

摘要

背景

现有的关于多发性硬化症患者的大量医学研究更多地集中在预测医学变量(如诊断、治疗)和个体变量(如疾病发作、性别等)上,而不是更广泛的社会背景因素。因此,尚未有研究调查多发性硬化症患者的社会资本等因素。

目的

本研究的目的是确定2012年转诊至伊朗多发性硬化症协会的多发性硬化症患者的社会资本与生活质量之间的关系。

方法

本横断面研究通过便利抽样和面对面访谈,对在10个月内访问伊朗多发性硬化症协会(德黑兰)的172名患者进行。收集数据的工具包括世界银行的社会资本综合问卷(SC-IQ)和多发性硬化症生活质量(MSQOL)-54。

结果

患者的平均年龄为34.8±9.6岁。社会资本问卷六个维度的分析表明,平均得分最高的是群体和网络成员身份(63.3±15.3),最低的是信任和团结(44.3±13.7)。回归模型的结果表明,社会资本与生活质量之间存在统计学上显著的正相关关系(P>0.0001)。

结论

由于本研究是首次在这一弱势群体中进行,其结果可以提供有关生活质量的宝贵信息,同时提出关于影响因素的假设。

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