Yoshida Karen K, Self Hazel M, Renwick Rebecca M, Forma Laura L, King Audrey J, Fell Leslie A
a Department of Physical Therapy , University of Toronto , Toronto , Ontario , Canada .
Disabil Rehabil. 2015;37(20):1825-33. doi: 10.3109/09638288.2014.981301. Epub 2015 Jul 9.
The purpose of this paper is to present a model of rehabilitation practice that is based on the recommendations of consumers who used rehabilitation services and have a life-changing physical impairment (spinal cord injury - SCI). This value-based practice model is based on two qualitative studies. The first study developed the framework (social adaptation) for a new practice model based on values. The second study, described in this paper, used the framework to learn about recommendations for change in the rehabilitation process. Participants in the second study were 80 volunteers who live with a SCI in the community, across the province of Ontario, Canada. A snowball strategy was used to recruit interested participants. Participants were involved in face-to-face interviews which included questions on what helped and hindered their initial rehabilitation process, and their recommendations for change. In this paper, we described a model that demonstrates how consumer input is essential in shaping a comprehensive rehabilitation process. The model is based on overarching value statements that express the worthiness of all individuals, the value of the lived experience of disability and the responsibility of the rehabilitation process to enable client autonomy. Four "values in action" are articulated: caring and respect for the individual and his/her personhood; applying the lived experience of disability; fostering autonomy; and promoting hopefulness. These values have been initially described in another paper based on a specific subset of 15 women living with SCI related to body issues during rehabilitation. This paper builds on this value work and we develop key practices for a progressive rehabilitation culture and model, based on the larger study group of 80 participants (men and women with SCI). This value-based model, when integrated with traditional, physical improvement-focused rehabilitation, has the potential to create a more effective process by offering clients better support as they go through the complex process of re-building their lives and making the transition back to the community. Implications for Rehabilitation We suggest that the Values in the Action Rehabilitation Practice Model that emphasized social adaptation be used along side the physical rehabilitation approach to enhance client-based practice. That peers with disabilities work collaboratively with rehabilitation professionals within a culture that acknowledges and reimburses their knowledge and expertise. Rehabilitation professionals learn about the lived experience of disability and systemic issues by being involved in grass-roots community organizations.
本文旨在提出一种康复实践模式,该模式基于使用过康复服务且患有改变生活的身体损伤(脊髓损伤 - SCI)的消费者的建议。这种基于价值的实践模式基于两项定性研究。第一项研究为基于价值的新实践模式开发了框架(社会适应)。本文所述的第二项研究使用该框架来了解康复过程中变革的建议。第二项研究的参与者是加拿大安大略省社区中80名患有脊髓损伤的志愿者。采用滚雪球策略招募感兴趣的参与者。参与者参与了面对面访谈,其中包括关于哪些因素对他们最初的康复过程有帮助和阻碍的问题,以及他们对变革的建议。在本文中,我们描述了一个模型,该模型展示了消费者的意见输入在塑造全面康复过程中是如何至关重要的。该模型基于总体价值陈述,这些陈述表达了所有人的价值、残疾生活经历的价值以及康复过程赋予客户自主权的责任。阐述了四个“行动中的价值”:关爱和尊重个人及其人格;应用残疾生活经历;促进自主性;以及提升希望感。这些价值最初在另一篇论文中基于15名与康复期间身体问题相关的脊髓损伤女性的特定子集进行了描述。本文在此价值工作的基础上,基于80名参与者(患有脊髓损伤的男性和女性)的更大研究群体,为渐进式康复文化和模式制定了关键实践。这种基于价值的模式与传统的、以身体改善为重点的康复相结合时,有可能通过在客户经历重建生活和回归社区的复杂过程中为他们提供更好的支持,创造一个更有效的过程。对康复的启示我们建议,强调社会适应的行动中的价值康复实践模式应与身体康复方法一起使用,以加强基于客户的实践。残疾同伴应在承认并回报其知识和专业技能的文化中与康复专业人员合作。康复专业人员通过参与基层社区组织来了解残疾生活经历和系统性问题。