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讲述发作性睡病——聚焦一种副作用。

Narrating narcolepsy--centering a side effect.

作者信息

Lundgren Britta

机构信息

a Department of Culture and Media Studies , Umeå University , Umeå , Sweden.

出版信息

Med Anthropol. 2015;34(2):150-65. doi: 10.1080/01459740.2014.962694.

DOI:10.1080/01459740.2014.962694
PMID:25457625
Abstract

The mass-vaccination with Pandemrix was the most important preventive measure in Sweden during the A(H1N1) influenza pandemic of 2009-2010, and covered 60% of the population. From 2010, an increased incidence of the neurological disease narcolepsy was reported, and an association with Pandemrix was affirmed for more than 200 children and young adults. The parental experience of this side effect provided a starting point for a collectively shaped critical narrative to be acted out in public, but also personalized narratives of continual learning about the disease and its consequences. This didactic functionality resulted in active meaning-making practices about how to handle the aftermath--using dark humor, cognitive tricks, and making themselves and their children's bodies both objects and subjects of knowledge. Using material from interviews with parents, this mixing of knowledge work and political work, and the potential for reflective consciousness, is discussed.

摘要

在2009 - 2010年甲型H1N1流感大流行期间,在瑞典大规模接种“潘得米克”疫苗是最重要的预防措施,覆盖了60%的人口。从2010年起,有报告称神经疾病发作性睡病的发病率有所上升,并且已确认200多名儿童和年轻人的发病与“潘得米克”疫苗有关。父母对这种副作用的经历为在公共场合展开集体塑造的批判性叙述提供了一个起点,同时也有关于不断了解这种疾病及其后果的个性化叙述。这种说教功能导致了关于如何应对后果的积极意义构建实践——运用黑色幽默、认知技巧,并使自己和孩子的身体既是知识的对象又是知识的主体。本文利用对父母的访谈材料,探讨了知识工作与政治工作的这种融合以及反思意识的潜力。

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Narrating narcolepsy--centering a side effect.讲述发作性睡病——聚焦一种副作用。
Med Anthropol. 2015;34(2):150-65. doi: 10.1080/01459740.2014.962694.
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A coordinated cross-disciplinary research initiative to address an increased incidence of narcolepsy following the 2009-2010 Pandemrix vaccination programme in Sweden.一项协调跨学科的研究计划,旨在解决瑞典 2009-2010 年 Pandemrix 疫苗接种计划后嗜睡症发病率上升的问题。
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Irish MP calls for key documents on Pandemrix to be handed to lawyers representing children with narcolepsy.爱尔兰议员呼吁将有关潘得米(Pandemrix)疫苗的关键文件交给代表发作性睡病儿童的律师。
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No serological evidence of influenza A H1N1pdm09 virus infection as a contributing factor in childhood narcolepsy after Pandemrix vaccination campaign in Finland.在芬兰大流行性流感疫苗接种运动后,未发现甲型 H1N1pdm09 流感病毒感染作为儿童发作性睡病的促成因素的血清学证据。
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