Kempf Sabrina, Lauer Norina, Corsten Sabine, Voigt-Radloff Sebastian
Hochschule Fresenius Idstein, Fachbereich Gesundheit & Soziales, Studiengang Logopädie B.Sc..
Hochschule Fresenius Idstein, Fachbereich Gesundheit & Soziales, Studiengang Logopädie B.Sc.
Z Evid Fortbild Qual Gesundhwes. 2014;108 Suppl 1:S45-52. doi: 10.1016/j.zefq.2014.08.002. Epub 2014 Sep 16.
In Germany, about 100,000 people currently suffer from aphasia. This speech disorder occurs as a result of neurologic events such as stroke or traumatic brain injury. Aphasia causes major limitations in social participation and quality of life and can be associated with unemployability and social isolation. For affected persons, it is essential to regain and maintain autonomy in daily life, both at work and with family and friends. The loss of autonomy is perceived much more dramatically than the loss of speech. Clients wish to minimise this loss of autonomy in daily life. As full recovery is not achievable in chronic aphasia, treatment must focus on improved compensatory approaches and on supporting the clients' coping strategies.
Based on eight randomised comparisons including 347 participants, a recent Cochrane review (Brady et al., 2012) revealed that speech therapy - as compared with no treatment - had positive effects on functional communication in clients suffering from aphasia (0.30 SMD; 95% CI[0.08 to 0.52]). There was no evidence suggesting that one type of training was superior to the others. However, quality of life and social participation were not evaluated as outcomes. Recent studies found that speech therapy-led training for communication and self-efficacy and the integration of communication partners may have a positive impact on these client-centred outcomes.
Speech therapy-led training for communication within a group setting should be manualised and pilot-tested with respect to feasibility and acceptance in a German sample of people with aphasia and their communication partners. Instruments measuring quality of life and social participation can be validated within the scope of this feasibility study. These research efforts are necessary to prepare a large-scale comparative effectiveness research trial comparing the effects of both usual speech therapy and speech therapy-led group communication training on quality of life and social participation.
在德国,目前约有10万人患有失语症。这种言语障碍是由中风或创伤性脑损伤等神经系统疾病引起的。失语症会对社会参与和生活质量造成重大限制,并可能导致失业和社会孤立。对于受影响的人来说,在工作以及与家人和朋友相处时,恢复并维持日常生活中的自主性至关重要。自主性的丧失比言语丧失更能显著地被感知到。患者希望将日常生活中这种自主性的丧失降至最低。由于慢性失语症无法完全康复,治疗必须侧重于改进补偿方法并支持患者的应对策略。
基于八项随机对照研究(涉及347名参与者),最近的一项Cochrane综述(布雷迪等人,2012年)显示,与不接受治疗相比,言语治疗对失语症患者的功能性沟通有积极影响(标准化均数差为0.30;95%置信区间[0.08至0.52])。没有证据表明一种训练类型优于其他类型。然而,生活质量和社会参与并未作为结果进行评估。最近的研究发现,由言语治疗主导的沟通和自我效能训练以及沟通伙伴的融入可能会对这些以患者为中心的结果产生积极影响。
在德国失语症患者及其沟通伙伴的样本中,应将由言语治疗主导的小组沟通训练手册化,并就可行性和可接受性进行预试验。在这项可行性研究范围内,可以验证测量生活质量和社会参与的工具。这些研究工作对于开展一项大规模的比较效果研究试验是必要的,该试验将比较常规言语治疗和由言语治疗主导的小组沟通训练对生活质量和社会参与的影响。