Cerminara Caterina, Santarone Marta Elena, Casarelli Livia, Curatolo Paolo, El Malhany Nadia
Pediatric Neurology, Department of Neurosciences, Tor Vergata University of Rome, Viale Oxford 81, 00133 Rome, Italy.
Pediatric Neurology, Department of Neurosciences, Tor Vergata University of Rome, Viale Oxford 81, 00133 Rome, Italy.
Epilepsy Behav. 2014 Dec;41:119-21. doi: 10.1016/j.yebeh.2014.09.053. Epub 2014 Oct 15.
Epilepsy is an important cause of neurological disability in children. Nowadays, an increasing number of parents or caregivers use the Internet as a source of health information concerning symptoms, therapy, and prognosis of epilepsy occurring during childhood. Therefore, high-quality websites are necessary to satisfy this request. Using the DISCERN tool, we evaluated online information on childhood epilepsy provided by the first 50 links displayed on the Google search engine. The same links were evaluated by a team of pediatric neurologists (PNs) and by a lay subject (LS). The evaluation performed by the PNs found out that only 9.6% of the websites showed good reliability, that only 7.2% of the websites had a good quality of information on treatment choices, and that only 21.5% of the websites showed good overall quality of the content. With regard to the evaluation performed by the neutral subject, it was found that 21.4% of the websites showed good reliability, that 59.5% of the websites showed poor quality of information on treatment choices, and that only 2% of the websites showed good overall quality of the content. Our conclusion is that online information about childhood epilepsy still lacks reliability, accuracy, and relevance as well as fails to provide a thorough review of treatment choices.
癫痫是导致儿童神经功能残疾的一个重要原因。如今,越来越多的家长或照顾者将互联网作为获取有关儿童期癫痫症状、治疗及预后等健康信息的来源。因此,需要高质量的网站来满足这一需求。我们使用DISCERN工具,对谷歌搜索引擎上显示的前50个链接所提供的关于儿童癫痫的在线信息进行了评估。同一组链接由一组儿科神经科医生(PNs)和一名普通受试者(LS)进行评估。儿科神经科医生进行的评估发现,只有9.6%的网站显示出良好的可靠性,只有7.2%的网站在治疗选择方面有高质量的信息,只有21.5%的网站显示出内容的整体质量良好。关于普通受试者进行的评估,发现21.4%的网站显示出良好的可靠性,59.5%的网站在治疗选择方面显示出信息质量较差,只有2%的网站显示出内容的整体质量良好。我们的结论是,关于儿童癫痫的在线信息仍然缺乏可靠性、准确性和相关性,也未能对治疗选择进行全面的综述。