Noreau Luc, Noonan Vanessa K, Cobb John, Leblond Jean, Dumont Frédéric S
Center for Interdisciplinary Research in Rehabilitation and Social Integration (CIRRIS) and Université Laval , Quebec City , Canada.
Rick Hansen Institute , Vancouver , Canada ; Division of Spine, Department of Orthopedics, University of British Columbia , Vancouver , Canada.
Top Spinal Cord Inj Rehabil. 2014 Fall;20(4):265-76. doi: 10.1310/sci2004-265.
There is a lack of literature regarding service needs of people with SCI living in the community. Better assessment of expressed and met and unmet needs would help in the development of effective service delivery.
From a national SCI Community Survey in Canada, the aim was to identify the most critical service needs of people living in the community at least 1 year post discharge from rehabilitation and the support they received to meet their needs.
Data were collected mainly through a secure Web site and encompassed demographics, personal and household income, an SCI severity measure, and an SCI community needs measure containing information on 13 SCI-related needs.
A total of 1,549 persons with SCI (traumatic lesion, n = 1,137; nontraumatic lesion, n = 412) across Canada completed the survey. Most critical needs for community integration were expressed by a substantial proportion of survey participants, but significantly more expressed and met needs were reported by persons with a traumatic than a nontraumatic lesion. Personal and environmental characteristics influenced the probability of expressing and meeting needs (eg, severity of injury and household income). Help and support to meet expressed needs were received from government agencies, community organizations, and friends or family.
Better assessment of expressed and met or unmet needs for services remains a challenge but will serve as a tool to optimize service delivery in the community. Environmental barriers to services, particularly the process of getting needs met and associated costs, remain an issue that requires a reconsideration of some aspects of access to services.
关于社区中脊髓损伤患者的服务需求，相关文献匮乏。更好地评估已表达的需求以及已满足和未满足的需求，将有助于制定有效的服务提供方案。
基于加拿大全国脊髓损伤社区调查，旨在确定康复出院至少1年后社区居民最关键的服务需求，以及他们为满足这些需求所获得的支持。
数据主要通过一个安全网站收集，涵盖人口统计学信息、个人和家庭收入、脊髓损伤严重程度测量指标，以及一项包含13项与脊髓损伤相关需求信息的脊髓损伤社区需求测量指标。
加拿大共有1549名脊髓损伤患者（创伤性损伤患者1137例；非创伤性损伤患者412例）完成了调查。相当比例的调查参与者表达了对融入社区的最关键需求，但创伤性损伤患者报告的已表达且已满足的需求明显多于非创伤性损伤患者。个人和环境特征影响了表达需求和满足需求的可能性（例如，损伤严重程度和家庭收入）。满足已表达需求所获得的帮助和支持来自政府机构、社区组织以及朋友或家人。
更好地评估已表达的需求以及已满足或未满足的服务需求仍然是一项挑战，但将成为优化社区服务提供的一种工具。服务的环境障碍，尤其是满足需求的过程及相关成本，仍然是一个需要重新审视服务获取某些方面的问题。
