School of Life, Sport & Social Sciences, Edinburgh Napier University, Edinburgh, UK.
Psychol Health Med. 2011 Aug;16(4):463-74. doi: 10.1080/13548506.2011.555769.
Individual semi-structured interviews were conducted with 17 individuals who had experienced a traumatic spinal cord injury (SCI), focusing on the participants' lived experience of SCI. The interviews were transcribed verbatim and were analysed for recurrent themes using interpretative phenomenological analysis (IPA). Here, we present three inter-related recurrent themes all concerning difficulties in adjusting to home life following hospital discharge: "loss of camaraderie", "lack of post-discharge care" and "other people's reactions to spinal cord injury". Participants reported that the camaraderie they formed with fellow patients during their rehabilitative stay in hospital generated feelings of security and community. This was discussed in stark contrast to the isolation and loneliness that they subsequently experienced post-hospital discharge. A perceived lack of physical, practical and psychological support coupled with negative and stigmatising reactions of the wider community served to make adjustment to home life post-SCI particularly difficult for the participants. The findings are discussed in relation to extant SCI literature, and recommendations for future health care of individuals with SCI are made.
对 17 名经历过外伤性脊髓损伤 (SCI) 的个人进行了个体半结构化访谈，重点关注参与者的 SCI 生活体验。采访内容逐字转录，并使用解释性现象学分析 (IPA) 对反复出现的主题进行分析。在这里，我们呈现三个相互关联的反复出现的主题，都涉及出院后在家生活的适应困难：“失去友谊”、“缺乏出院后护理”和“其他人对脊髓损伤的反应”。参与者报告说，他们在医院康复期间与其他患者建立的友谊感营造了一种安全感和社区感。这与他们出院后所经历的孤立和孤独形成鲜明对比。他们认为缺乏身体、实际和心理支持，加上更广泛社区的负面和污名化反应，使得他们在 SCI 后特别难以适应家庭生活。研究结果与现有的 SCI 文献进行了讨论，并对未来 SCI 患者的医疗保健提出了建议。
