Liu N, Hu Z-W, Zhou M-W, Biering-Sørensen F
Department of Rehabilitation Medicine, Peking University Third Hospital, Beijing, China.
Department for Spinal Cord Injuries, Glostrup University Hospital and Faculty of Health Sciences, University of Copenhagen, Copenhagen, Denmark.
Spinal Cord. 2015 Sep;53(9):658-62. doi: 10.1038/sc.2014.217. Epub 2014 Dec 9.
This is a survey-based study.
To investigate the practice of spinal cord injury (SCI) core data collection by Chinese physicians to measure the extent and accuracy of routine collection of elements contained in the International Spinal Cord Injury Core Data Set (ISCICDS).
This study was conducted in a workshop in Peking University, China.
During an SCI workshop, a survey questionnaire was administered to 48 physicians from 20 provinces of China. The questions were developed on the basis of the data elements within the ISCICDS including the following issues: date of birth, injury, acute admission and inpatient discharge, total hospitalized days, gender, injury etiology, vertebral injury, associated injury, spinal surgery, ventilatory assistance and place of discharge. In addition, data collection practice on neurologic examinations including date, neurological level, injury severity and frequency of examination were involved.
The self-reported practice of data collection regarding date of birth, acute admission and inpatient discharge, gender, vertebral injury, associated injury, spinal surgery and frequency of neurological examination are consistent with the information in the ISCICDS among the majority (⩾76%) of physicians. However, only gender, vertebral injury, associated injury and spinal surgery are completely consistent. The consistency percentages of other data elements ranged from 39.5 to 66.8%.
Apart from four data elements, which were collected consistently with the intention in the ISCICDS, the collection of other core data elements need to be documented according to the guidelines included in the ISCICDS to ensure consistency of practice among Chinese physicians and to support worldwide comparison of SCI data.Suggestion:Only four data elements are collected in complete accordance with the ISCICDS by Chinese physicians. ISCICDS guidelines for the remaining elements need to be more rigorously adhered to in order to promote consistency and comparability of data.
这是一项基于调查的研究。
调查中国医生收集脊髓损伤（SCI）核心数据的情况，以衡量国际脊髓损伤核心数据集（ISCICDS）中各项内容常规收集的程度和准确性。
本研究在中国北京大学的一次研讨会上进行。
在一次SCI研讨会上，对来自中国20个省份的48名医生进行了问卷调查。问题是根据ISCICDS中的数据元素制定的，包括以下问题：出生日期、损伤、急性入院和住院出院、总住院天数、性别、损伤病因、椎体损伤、相关损伤、脊柱手术、通气辅助和出院地点。此外，还涉及神经学检查的数据收集情况，包括日期、神经平面、损伤严重程度和检查频率。
大多数（⩾76%）医生在出生日期、急性入院和住院出院、性别、椎体损伤、相关损伤、脊柱手术以及神经学检查频率方面自我报告的数据收集情况与ISCICDS中的信息一致。然而，只有性别、椎体损伤、相关损伤和脊柱手术完全一致。其他数据元素的一致率在39.5%至66.8%之间。
除了四个与ISCICDS意图一致收集的数据元素外，其他核心数据元素的收集需要按照ISCICDS中的指南进行记录，以确保中国医生之间做法的一致性，并支持全球范围内SCI数据的比较。建议：中国医生仅完全按照ISCICDS收集了四个数据元素。对于其余元素，需要更严格地遵守ISCICDS指南，以提高数据的一致性和可比性。
