Hopkinson Jane B, Richardson Alison
School of Healthcare Sciences, College of Biomedical and Life Sciences, Cardiff University, Cardiff, UK
University Hospital Southampton NHS Foundation Trust, Southampton, UK Faculty of Health Sciences, University of Southampton, Southampton, UK.
Palliat Med. 2015 Feb;29(2):164-76. doi: 10.1177/0269216314556924. Epub 2014 Dec 12.
Worldwide, most people with incurable cancer experience weight loss and anorexia. These symptoms can distress patients and their family caregivers. Interventions that take account of the relationship between patient and family caregiver may improve outcomes for both members of this dyad.
To report an example of process for the development of a complex intervention, the Family Approach to Weight and Eating.
A mixed-methods process informed by the Medical Research Council's guidelines for developing a complex intervention was used to develop a psychosocial intervention for patients with incurable cancer and weight loss or poor appetite and their family caregivers and then to test for its feasibility, acceptability and perceived benefit.
South of England in 2010/2011.
A purposive sample of patient-family caregiver dyads under the care of a specialist community palliative care team. Patient participants had incurable cancer and were cachectic or at risk of cachexia.
The patient-family caregiver dyads comprised seven female and nine male patients (age range 41-84 years) and their carers. The emergent form of the Family Approach to Weight and Eating was found to aid family talk about food, feelings and reciprocity, without adverse consequences. Of the dyads, 15 reported benefits of the Family Approach to Weight and Eating. Three patient participants spoke of the approach evoking sadness and three carers of guilt.
The Family Approach to Weight and Eating should now be tested in a pilot trial and the effect on emotional health outcomes in patients and their family caregivers evaluated.
在全球范围内，大多数患有无法治愈癌症的患者都会出现体重减轻和食欲不振的症状。这些症状会使患者及其家庭护理人员感到痛苦。考虑到患者与家庭护理人员之间关系的干预措施可能会改善这两个相关人员的治疗效果。
报告一个复杂干预措施——“体重与饮食家庭疗法”的开发过程实例。
采用了一种混合方法，该方法参考了医学研究理事会关于开发复杂干预措施的指南，旨在为患有无法治愈癌症且体重减轻或食欲不振的患者及其家庭护理人员开发一种心理社会干预措施，然后测试其可行性、可接受性和感知益处。
2010年/2011年英格兰南部。
由一个专业社区姑息治疗团队护理的患者-家庭护理人员二元组的目的抽样。患者参与者患有无法治愈的癌症，且身体消瘦或有恶病质风险。
患者-家庭护理人员二元组包括7名女性和9名男性患者（年龄范围41 - 84岁）及其护理人员。发现“体重与饮食家庭疗法”的新兴形式有助于家庭谈论食物、感受和互惠关系，且无不良后果。在这些二元组中，15个报告了“体重与饮食家庭疗法”的益处。3名患者参与者表示该方法引发了悲伤情绪，3名护理人员表示有内疚感。
“体重与饮食家庭疗法”现在应在一项试点试验中进行测试，并评估其对患者及其家庭护理人员情绪健康结果的影响。
