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[患有胎儿酒精谱系障碍儿童的寄养和领养父母的照顾者压力]

[Caregiver Stress in Foster and Adoptive Parents of Children with Fetal Alcohol Spectrum Disorders].

作者信息

Sarimski Klaus

出版信息

Prax Kinderpsychol Kinderpsychiatr. 2014;63(8):649-65. doi: 10.13109/prkk.2014.63.8.649.

DOI:10.13109/prkk.2014.63.8.649
PMID:25524036
Abstract

Caregiver Stress in Foster and Adoptive Parents of Children with Fetal Alcohol Spectrum Disorders. Foster and adoptive parents of 71 children with fetal alcohol syndrome (FAS) report on developmental and behavioral characteristics, family stress, coping resources and their satisfaction with support. The data reveal an elevated rate of social and emotional problems in the children. In spite positive individual and social resources, the foster and adoptive parents feel a high level of caregiver stress. 30 % of them rate the support they receive from pediatric, therapeutic or educational services as lower than expected. Specifically, they miss early information on the diagnosis, professional knowledge and support for the special challenges of education and managing behavioral problems in their collaboration with social support agencies.

摘要

患有胎儿酒精谱系障碍儿童的寄养及领养父母的照顾者压力。71名患有胎儿酒精综合征(FAS)儿童的寄养及领养父母报告了孩子的发育和行为特征、家庭压力、应对资源以及他们对所获支持的满意度。数据显示这些儿童存在社会和情感问题的比例较高。尽管有积极的个人和社会资源,但寄养及领养父母仍感到照顾者压力很大。其中30%的人认为他们从儿科、治疗或教育服务中获得的支持低于预期。具体而言,他们缺少关于诊断的早期信息、专业知识以及在与社会支持机构合作时应对教育特殊挑战和管理行为问题方面的支持。

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