Department of Respiratory Medicine, Royal Children's Hospital, Melbourne, VIC, Australia; Murdoch Children's Research Institute, Melbourne, VIC, Australia.
Centre for Adolescent Health, Royal Children's Hospital, Melbourne, VIC, Australia; Murdoch Children's Research Institute, Melbourne, VIC, Australia; Department of Paediatrics, University of Melbourne, Melbourne, VIC, Australia.
Lancet Respir Med. 2015 Jan;3(1):70-86. doi: 10.1016/S2213-2600(14)70231-0. Epub 2014 Dec 17.
Adolescents and adults with cystic fibrosis now approach developmental milestones, including sexual and reproductive ones, at a similar time to their healthy peers. Yet, their sexual and reproductive health (SRH) is profoundly affected by their disease, and their SRH decisions can substantially affect their health. Navigation of SRH milestones in the context of cystic fibrosis needs education, guidance, and access to SRH services. In this Review, we discuss scientific knowledge of SRH in patients with cystic fibrosis across the life course and clinical practices for SRH within cystic fibrosis care. We identify crucial gaps in SRH education of patients and their access to resources and then present a model of care for provision of developmentally appropriate SRH education and care within cystic fibrosis services across the life course. This model emphasises the central importance of the cystic fibrosis team and service links to primary and specialist SRH care.
青少年和成年囊性纤维化患者现在与健康同龄人一样，在相似的时间内达到发育里程碑，包括性和生殖里程碑。然而，他们的性和生殖健康（SRH）受到其疾病的严重影响，他们的 SRH 决策也会对其健康产生重大影响。在囊性纤维化的背景下，SRH 里程碑的导航需要教育、指导和 SRH 服务的获取。在这篇综述中，我们讨论了囊性纤维化患者整个生命周期中的 SRH 科学知识，以及囊性纤维化护理中的 SRH 临床实践。我们确定了患者 SRH 教育和资源获取方面的关键差距，然后提出了一个在囊性纤维化服务中提供符合发育阶段的 SRH 教育和护理的护理模式。该模式强调囊性纤维化团队以及与初级和专科 SRH 护理的服务联系的核心重要性。
