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[晚期癌症患者复杂信息的有效组织方法]

[Effective methods of organizing complex information in advanced cancer patients].

作者信息

Oshiro Tatsuo, Oshiro Hisako, Tanimizu Masahito

机构信息

Oshiro Clinic, Surgery and Gastroenterology.

出版信息

Gan To Kagaku Ryoho. 2014 Dec;41 Suppl 1:26-9.

PMID:25595074
Abstract

Advanced cancer patients often present with variable clinical information documenting widespread lesions and treatment histories. For health care providers, organizing and managing this information is crucial. In our ambulatory and home palliative/ hospice care practice, two visual tools are used: 1 ) a one-page line diagram which shows the Edmonton Labeled Visual Information System (ELVIS) and a schematic demarcation of dermatomes shown as distinct segments, and 2 ) a one-page summary report containing various graphs displaying the transition of clinical variables which appear to be predictive of survival. These concise visual representations of cancer information can be beneficial for summarizing or reviewing the disease and its clinical course, and in the transfer of patient information to other institutions. They may also serve as an aid to improve information recall in cancer patients, as well as to provide both the patients and their caregivers with information about cancer trajectories so that they can set appropriate goals, priorities, and expectations of care.

摘要

晚期癌症患者常常呈现出记录广泛病变和治疗史的各种临床信息。对于医疗保健提供者而言,整理和管理这些信息至关重要。在我们的门诊及家庭姑息治疗/临终关怀实践中,使用了两种可视化工具:1)一张单页线条图,展示了埃德蒙顿标记视觉信息系统(ELVIS)以及作为不同节段呈现的皮节示意性划分;2)一份单页总结报告,包含各种图表,显示似乎可预测生存的临床变量的变化。这些简洁的癌症信息可视化呈现对于总结或回顾疾病及其临床过程,以及将患者信息转至其他机构可能有益。它们还可作为一种辅助手段,用于提高癌症患者对信息的记忆,同时为患者及其护理人员提供有关癌症发展轨迹的信息,以便他们能够设定适当的护理目标、优先事项和期望。

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