Howland Renata E, Madsen Ann M, Toprani Amita, Gambatese Melissa, Mulready-Ward Candace, Begier Elizabeth
New York City Department of Health and Mental Hygiene, New York, NY, USA,
Matern Child Health J. 2015 Jul;19(7):1559-66. doi: 10.1007/s10995-015-1664-7.
National birth registration guidelines were revised in 2003 to improve data quality; however, few studies have evaluated the impact on local jurisdictions and their data users. In New York City (NYC), approximately 125,000 births are registered annually with the NYC Department of Health and Mental Hygiene, and data are used routinely by the department's maternal and child health (MCH) programs. In order to better meet MCH program needs, we used Centers for Disease Control and Prevention guidelines to assess birth data usefulness, simplicity, data quality, timeliness and representativeness. We interviewed birth registration and MCH program staff, reviewed a 2009 survey of birth registrars (n = 39), and analyzed 2008-2011 birth records for timeliness and completeness (n = 502,274). Thirteen MCH programs use birth registration data for eligibility determination, needs assessment, program evaluation, and surveillance. Demographic variables are used frequently, nearly 100 % complete, and considered the gold standard by programs; in contrast, medical variables' use and validity varies widely. Seventy-seven percent of surveyed birth registrars reported ≥1 problematic items in the system; 64.1 % requested further training. During 2008-2011, the median interval between birth and registration was 5 days (range 0-260 days); 11/13 programs were satisfied with timeliness. The NYC birth registration system provides local MCH programs useful, timely, and representative data. However, some medical items are difficult to collect, of low quality, and rarely used. We recommend enhancing training for birth registrars, continuing quality improvement efforts, increasing collaboration with program users, and removing consistently low-quality and low-use variables.
2003年修订了国家出生登记指南以提高数据质量;然而,很少有研究评估其对地方司法管辖区及其数据使用者的影响。在纽约市,每年约有12.5万例出生在纽约市卫生和精神卫生部门进行登记,该部门的母婴健康(MCH)项目经常使用这些数据。为了更好地满足母婴健康项目的需求,我们使用疾病控制和预防中心的指南来评估出生数据的有用性、简易性、数据质量、及时性和代表性。我们采访了出生登记和母婴健康项目工作人员,回顾了2009年对出生登记员的一项调查(n = 39),并分析了2008 - 2011年出生记录的及时性和完整性(n = 502,274)。13个母婴健康项目将出生登记数据用于资格判定、需求评估、项目评估和监测。人口统计学变量经常被使用,完成率近100% ,被各项目视为黄金标准;相比之下,医学变量的使用和有效性差异很大。77% 的受访出生登记员报告系统中存在≥1个有问题的项目;64.1% 的人要求进一步培训。在2008 - 2011年期间,出生与登记之间的中位间隔为5天(范围0 - 260天);13个项目中有11个对及时性感到满意。纽约市出生登记系统为当地母婴健康项目提供了有用、及时且具有代表性的数据。然而,一些医学项目难以收集,质量较低,且很少被使用。我们建议加强对出生登记员的培训,持续进行质量改进工作,加强与项目使用者的合作,并去除一直质量低且使用少的变量。