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中国大陆癌症患儿父母的心理韧性与心理社会功能:一项横断面调查

Resilience and Psychosocial Function Among Mainland Chinese Parents of Children With Cancer: A Cross-sectional Survey.

作者信息

Ye Zeng Jie, Guan Hui Jie, Wu Liu Hong, Xiao Min Yi, Luo Dong Mei, Quan Xiao Ming

机构信息

Author Affiliations: Guangzhou University of Chinese Medicine (Mr Ye); Affiliated Tumor Hospital of Sen-Yat Sen University (Mss Guan, Wu, Xiao, and Luo); and Nursing Department of The First Affiliated Hospital, Guangzhou University of Chinese Medicine, Guangzhou, Guangdong Province, China.

出版信息

Cancer Nurs. 2015 Nov-Dec;38(6):466-74. doi: 10.1097/NCC.0000000000000220.

Abstract

BACKGROUND

Resilience is commonly used to refer to the capacity to resist negative psychological reactions when encountering aversive circumstances. However, clinicians generally define resilience as a lack of psychological distress or an adoption of positive attitude in response to a potentially traumatic event. Although resilience was initially considered to be a psychological variable, it has gradually become seen as a psychosocial indicator now used in clinical settings in the Western world but is still a relatively new topic in most Eastern countries. In this study, we aimed to extend our understandings of the psychological responses of a group of mainland Chinese parents upon being informed that their children were diagnosed with cancer, using resilience as a major indicator.

OBJECTIVE

The aim of this study was to evaluate the level of resilience among mainland Chinese parents in response to knowing that their children were diagnosed with cancer and to examine the relationships between resilience and other psychosocial outcomes.

METHODS

A descriptive and a cross-sectional survey design was used and involved a sample of 125 parents who visited a specialist cancer hospital in southeast China between September 2013 and February 2014.

RESULTS

The participants reported lower level of resilience as compared with a control population in the Chinese community (P < .01). Resilience was negatively correlated with uncertainty in illness (P < .01) and depression (P < .01) and was positively correlated with social support (P < .01) and all other positive coping strategies subscales (P < .01). Parents from the high- resilience group reported better psychosocial functions than did those from the low-resilience group (P < .01). In addition, 6 influencing factors were identified and entered into the multiple linear regression equation of psychological resilience, which predicts 38.3% (adjusted R) of total variation in psychological resilience.

CONCLUSION

A high level of resilience in parents of children diagnosed with cancer is associated with better psychosocial function in response to the traumatic event.

IMPLICATIONS FOR CLINICAL PRACTICE

Additional attention should be given to those Mainland Chinese parents who demonstrated a low level of resilience in response to their child's diagnosis. This is particularly important because of the long and stressful process for cancer treatment. Clinicians should also provide targeted interventions to those parents to promote their psychological resilience.

摘要

背景

心理韧性通常用于指在遇到不利情况时抵抗负面心理反应的能力。然而,临床医生通常将心理韧性定义为在面对潜在创伤性事件时没有心理困扰或采取积极态度。虽然心理韧性最初被认为是一个心理变量,但现在它已逐渐被视为一种社会心理指标,在西方世界的临床环境中使用,但在大多数东方国家仍然是一个相对较新的话题。在本研究中,我们旨在以心理韧性为主要指标,扩展我们对一群中国大陆父母在得知其子女被诊断患有癌症后的心理反应的理解。

目的

本研究的目的是评估中国大陆父母在得知其子女被诊断患有癌症后的心理韧性水平,并检查心理韧性与其他社会心理结果之间的关系。

方法

采用描述性和横断面调查设计,样本包括2013年9月至2014年2月期间在中国东南部一家专科癌症医院就诊的125名父母。

结果

与中国社区的对照组相比,参与者报告的心理韧性水平较低(P <.01)。心理韧性与疾病不确定性(P <.01)和抑郁(P <.01)呈负相关,与社会支持(P <.01)和所有其他积极应对策略子量表(P <.01)呈正相关。高心理韧性组的父母报告的社会心理功能比低心理韧性组的父母更好(P <.01)。此外,确定了6个影响因素并将其纳入心理韧性的多元线性回归方程,该方程预测心理韧性总变异的38.3%(调整R)。

结论

被诊断患有癌症的儿童的父母具有较高的心理韧性与对创伤性事件有更好的社会心理功能相关。

对临床实践的启示

应特别关注那些对孩子的诊断表现出低心理韧性水平的中国大陆父母。由于癌症治疗过程漫长且压力大,这一点尤为重要。临床医生还应针对这些父母提供有针对性的干预措施,以促进他们的心理韧性。

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