Dąbrowska Aleksandra, Malicka Iwona
Department of Physiotherapy, Wroclaw University of Health and Sport Sciences, 51-612 Wroclaw, Poland.
Int J Environ Res Public Health. 2022 Apr 20;19(9):5002. doi: 10.3390/ijerph19095002.
The occurrence of pediatric cancer is an example of a non-normative situation that reorganizes family life. The aim of the study was to evaluate the functioning of a family with a child affected by cancer. The study was conducted on 339 families. The study group consisted of 153 families with children with cancer (mean age 36.4 ± 6.8 years). The control group was composed of 186 families with healthy children (mean age 39.0 ± 6.3 years). All of them completed the author’s survey questionnaire on family functioning and the Resilience Measurement Scale (RMS). A statistically significant association was found between the place of residence (p < 0.001), education (p < 0.001), assessment of the material status (p < 0.001) and employment structure (p < 0.001) of parents and the membership in the study group or the control group. Statistical significance was achieved for the main effects as measured on the RMS (5 factors and 2 groups). The study group showed consistently lower levels of the factors of the scale. Statistically significant observations were reported for Factor 1 (perseverance, proactive approach) and Factor 4 (tolerance to failure, life as a challenge) (12.0 vs. 14.5, p < 0.001, 13.4 vs. 14.2, p = 0.04, respectively). Parents of children with cancer were characterized by lower persistence, determination and tolerance to failure, which could affect the quality of life of the whole family. In addition, different socio-economic conditions of family functioning were found in families with children with cancer as compared to families with healthy children.
儿童癌症的发生是一种会重组家庭生活的非规范性情况的例子。该研究的目的是评估有患癌儿童的家庭的功能。这项研究对339个家庭进行。研究组由153个有患癌儿童的家庭组成（平均年龄36.4±6.8岁）。对照组由186个有健康儿童的家庭组成（平均年龄39.0±6.3岁）。他们都完成了作者关于家庭功能的调查问卷和复原力测量量表（RMS）。在父母的居住地点（p<0.001）、教育程度（p<0.001）、物质状况评估（p<0.001）和就业结构（p<0.001）与研究组或对照组的成员身份之间发现了具有统计学意义的关联。对于在RMS上测量的主要效应（5个因素和2组）达到了统计学显著性。研究组在量表各因素上的水平始终较低。在因素1（毅力、积极主动的方法）和因素4（对失败的容忍度、生活是一种挑战）方面报告了具有统计学意义的观察结果（分别为12.0对14.5，p<0.001；13.4对14.2，p=0.04）。患癌儿童的父母表现出较低的坚持性、决心和对失败的容忍度，这可能会影响整个家庭的生活质量。此外，与有健康儿童的家庭相比，有患癌儿童的家庭在家庭功能的社会经济条件方面存在差异。
