脑瘫患儿：他们为何夜间清醒？一项初步研究。
Children with cerebral palsy: why are they awake at night? A pilot study.
作者信息
Petersen Sacha, Harvey Adrienne, Reddihough Dinah, Newall Fiona
机构信息
Developmental Medicine, Royal Children's Hospital, Melbourne, Victoria, Australia; Developmental Disability and Rehabilitation Research group, Murdoch Childrens Research Institute, Parkville, Victoria, Australia.
出版信息
J Spec Pediatr Nurs. 2015 Apr;20(2):98-104. doi: 10.1111/jspn.12106. Epub 2015 Jan 29.
PURPOSE
The purpose of this study was to assess acceptability of study design and utility of assessment tools for determining causes of sleep disturbance in children with cerebral palsy (CP) and their caregivers.
DESIGN AND METHODS
This pilot study explored parental report (n = 8) of the child's sleep using a validated sleep questionnaire, a survey, and a time use diary.
RESULTS
The selected tools were appropriate. Study design provided challenges for recruitment. Future research should include qualitative data.
PRACTICE IMPLICATIONS
Although further research is required to confirm results, sleep problems for children with CP and resulting sleep disturbances for caregivers may be an important part of clinical assessment.
目的
本研究旨在评估研究设计的可接受性以及评估工具在确定脑瘫（CP）患儿及其照料者睡眠障碍原因方面的实用性。
设计与方法
这项试点研究通过一份经过验证的睡眠问卷、一项调查和一份时间使用日记，探讨了家长对孩子睡眠情况的报告（n = 8）。
结果
所选工具是合适的。研究设计在招募方面存在挑战。未来的研究应纳入定性数据。
实践意义
尽管需要进一步研究来证实结果，但CP患儿的睡眠问题以及由此给照料者带来的睡眠干扰可能是临床评估的重要组成部分。
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