• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

控制数据使用以保护隐私。

Control use of data to protect privacy.

机构信息

Worcester Polytechnic Institute, Worcester, MA 01609, USA.

出版信息

Science. 2015 Jan 30;347(6221):504-6. doi: 10.1126/science.aaa4961.

DOI:10.1126/science.aaa4961
PMID:25635089
Abstract

Massive data collection by businesses and governments calls into question traditional methods for protecting privacy, underpinned by two core principles: (i) notice, that there should be no data collection system whose existence is secret, and (ii) consent, that data collected for one purpose not be used for another without user permission. But notice, designated as a fundamental privacy principle in a different era, makes little sense in situations where collection consists of lots and lots of small amounts of information, whereas consent is no longer realistic, given the complexity and number of decisions that must be made. Thus, efforts to protect privacy by controlling use of data are gaining more attention. I discuss relevant technology, policy, and law, as well as some examples that can illuminate the way.

摘要

企业和政府的大规模数据收集对传统的隐私保护方法提出了质疑,这些方法基于两个核心原则:(i)通知,即不应该存在其存在是秘密的数据收集系统,以及(ii)同意,即未经用户许可,不得将为一个目的收集的数据用于另一个目的。但是,在收集大量小额信息的情况下,通知作为一个不同时代的基本隐私原则意义不大,而鉴于必须做出的复杂性和数量的决策,同意也不再现实。因此,通过控制数据使用来保护隐私的努力受到了更多的关注。我讨论了相关的技术、政策和法律,以及一些可以说明问题的例子。

相似文献

1
Control use of data to protect privacy.控制数据使用以保护隐私。
Science. 2015 Jan 30;347(6221):504-6. doi: 10.1126/science.aaa4961.
2
Medical records. Enhancing privacy, preserving the common good.医疗记录。增强隐私保护,维护公共利益。
Hastings Cent Rep. 1999 Mar-Apr;29(2):14-23.
3
What the "right to be forgotten" means for privacy in a digital age.数字时代的隐私权:“被遗忘权”意味着什么。
Science. 2015 Jan 30;347(6221):507-8. doi: 10.1126/science.aaa4603.
4
Medicare program; availability of Medicare data for performance measurement. Final rule.医疗保险计划;用于绩效衡量的医疗保险数据的可获取性。最终规则。
Fed Regist. 2011 Dec 7;76(235):76542-71.
5
Respecting Context to Protect Privacy: Why Meaning Matters.尊重语境以保护隐私:意义为何重要。
Sci Eng Ethics. 2018 Jun;24(3):831-852. doi: 10.1007/s11948-015-9674-9. Epub 2015 Jul 12.
6
Forensic DNA phenotyping: Developing a model privacy impact assessment.法医 DNA 表型分析:建立模型的隐私影响评估。
Forensic Sci Int Genet. 2018 May;34:222-230. doi: 10.1016/j.fsigen.2018.03.005. Epub 2018 Mar 8.
7
Privacy as an enabler, not an impediment: building trust into health information exchange.将隐私作为促进因素,而非障碍:在健康信息交换中建立信任。
Health Aff (Millwood). 2009 Mar-Apr;28(2):416-27. doi: 10.1377/hlthaff.28.2.416.
8
Disentangling privacy from property: toward a deeper understanding of genetic privacy.区分隐私与财产:迈向对基因隐私的更深入理解
George Washington Law Rev. 2004 Apr;72(4):737-814.
9
Security, privacy, and confidentiality issues on the Internet.互联网上的安全、隐私和保密问题。
J Med Internet Res. 2002 Apr-Nov;4(2):E12. doi: 10.2196/jmir.4.2.e12.
10
Perspectives of Australian adults about protecting the privacy of their health information in statistical databases.澳大利亚成年人对保护其健康信息在统计数据库中隐私的看法。
Int J Med Inform. 2012 Apr;81(4):279-89. doi: 10.1016/j.ijmedinf.2012.01.005. Epub 2012 Feb 10.

引用本文的文献

1
Digital Biobanking and Big Data as a New Research Tool: A Position Paper.数字生物样本库与大数据作为一种新的研究工具:立场文件
Healthcare (Basel). 2023 Jun 22;11(13):1825. doi: 10.3390/healthcare11131825.
2
Analysis of Legal Issues of Personal Information Protection in the Field of Big Data.大数据领域个人信息保护的法律问题分析。
J Environ Public Health. 2022 Aug 29;2022:1678360. doi: 10.1155/2022/1678360. eCollection 2022.
3
Protecting Participants in Genomic Research: Understanding the "Web of Protections" Afforded by Federal and State Law.
保护基因组研究参与者:了解联邦和州法律所提供的“保护网”。
J Law Med Ethics. 2020 Mar;48(1):126-141. doi: 10.1177/1073110520917000.
4
Thought leader perspectives on benefits and harms in precision medicine research.精准医学研究中获益与危害的意见领袖观点。
PLoS One. 2018 Nov 26;13(11):e0207842. doi: 10.1371/journal.pone.0207842. eCollection 2018.