McDonald Fiona E J, Patterson Pandora
CanTeen Australia, NSW, Australia Cancer Nursing Research Unit, Sydney Nursing School, The University of Sydney, NSW, Australia
CanTeen Australia, NSW, Australia Cancer Nursing Research Unit, Sydney Nursing School, The University of Sydney, NSW, Australia.
J Pediatr Oncol Nurs. 2015 Sep-Oct;32(5):284-94. doi: 10.1177/1043454214563408. Epub 2015 Feb 2.
Adolescents and young adults (AYAs) have a need for information about their cancer diagnosis. The purpose of this study was to evaluate a book for AYAs diagnosed with cancer, in particular to assess satisfaction, changes in perceived knowledge and coping, the impact of health literacy (HL) on perceived knowledge, and the impact of the book on distress levels.
Forty-six AYAs (12-24 years of age) completed questionnaires before and after receiving the Now What . . . ? book designed to provide broad and comprehensive information to AYAs with cancer.
Overall satisfaction with the book was excellent. Levels of perceived knowledge increased in several domains; however, levels of distress, which were elevated, did not improve after participants received the book. Levels of HL related to prebook perceived knowledge, but not to postbook perceived knowledge, suggested that the book is useful for people with all levels of HL.
The usefulness and high levels of satisfaction with the book, including the qualitative feedback, demonstrate the potential benefit of the Now What . . . ? books for AYA patients diagnosed with cancer.
青少年和青年（AYA）需要了解他们的癌症诊断信息。本研究的目的是评估一本面向被诊断患有癌症的AYA的书籍，特别是评估满意度、感知知识和应对方式的变化、健康素养（HL）对感知知识的影响以及该书对痛苦程度的影响。
46名12至24岁的AYA在收到《现在该怎么办……？》这本书之前和之后完成了问卷调查。该书旨在为患有癌症的AYA提供广泛而全面的信息。
对这本书的总体满意度很高。在几个领域中，感知知识水平有所提高；然而，痛苦程度虽然较高，但在参与者收到这本书后并没有改善。HL水平与阅读前的感知知识相关，但与阅读后的感知知识无关，这表明这本书对所有HL水平的人都有用。
这本书的实用性和高满意度，包括定性反馈，证明了《现在该怎么办……？》这本书对被诊断患有癌症的AYA患者的潜在益处。
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