Lin Merry, Sansom-Daly Ursula M, Wakefield Claire E, McGill Brittany C, Cohn Richard J
1 Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital , Randwick, NSW, Australia .
2 Discipline of Pediatrics, School of Women's and Children's Health, UNSW Medicine, University of New South Wales , Kensington, NSW, Australia .
J Adolesc Young Adult Oncol. 2017 Mar;6(1):150-158. doi: 10.1089/jayao.2016.0024. Epub 2016 Sep 22.
Health literacy is a critical determinant of health and an emerging public health concern. Little is known about the health literacy of adolescents and young adults (AYAs) or about the ability of young patients to communicate health needs and critically evaluate information. We used qualitative methods to investigate the three aspects of health literacy (functional, communicative, and critical) in Australian AYA cancer survivors.
Forty Australian AYA cancer survivors, aged 15-29 either at diagnosis or recruitment, participated in semistructured interviews. Participants were asked about sources of information and ability to understand information, communicate questions, and critically evaluate the validity, reliability, and relevancy of information to their situation. Self-reported adherence levels and advice for AYA-specific care was also obtained. Interviews were coded and analyzed for emergent themes using QSR NVivo 10.
Almost all AYAs named their doctor as the primary source of information. Most AYAs reported no difficulties with understanding, communicating, or assessing relevancy of information. Conversely, few AYAs reported confidence in assessment of validity and reliability of information. The doctor-patient relationship appeared to be an influential factor in all aspects of health literacy.
AYAs frequently reported having a good understanding and communication around health information; however, few AYAs described engaging in critical evaluations of this information. The potential impact of the doctor-patient relationship across several domains of health literacy suggests that more focus could be placed on promoting health literacy at physician, community, and societal levels, in addition to promoting individual skills.
健康素养是健康的关键决定因素，也是一个新出现的公共卫生问题。对于青少年和青年成人（AYA）的健康素养，以及年轻患者表达健康需求和批判性评估信息的能力，我们知之甚少。我们采用定性方法调查了澳大利亚AYA癌症幸存者健康素养的三个方面（功能性、沟通性和批判性）。
40名在诊断或招募时年龄为15 - 29岁的澳大利亚AYA癌症幸存者参与了半结构化访谈。参与者被问及信息来源以及理解信息、提出问题、批判性评估信息对自身情况的有效性、可靠性和相关性的能力。还获取了自我报告的依从水平以及针对AYA特定护理的建议。使用QSR NVivo 10对访谈进行编码并分析以找出新出现的主题。
几乎所有AYA都将他们的医生列为主要信息来源。大多数AYA表示在理解、沟通或评估信息相关性方面没有困难。相反，很少有AYA表示对评估信息的有效性和可靠性有信心。医患关系似乎是健康素养各个方面的一个影响因素。
AYA经常报告在健康信息方面有良好的理解和沟通；然而，很少有AYA描述对这些信息进行批判性评估。医患关系在健康素养的多个领域的潜在影响表明，除了提升个人技能外，还可以更多地关注在医生、社区和社会层面促进健康素养。
