Karel Michele J, Mulligan Elizabeth A, Walder Annette, Martin Lindsey A, Moye Jennifer, Naik Aanand D
Mental Health Service, VA Boston Healthcare System, Boston, MA, USA.
Department of Psychiatry, Harvard Medical School, Boston, MA, USA.
Health Expect. 2016 Jun;19(3):679-90. doi: 10.1111/hex.12343. Epub 2015 Jan 29.
When patients have multiple chronic illnesses, it is not feasible to provide disease-based care when treatments for one condition adversely affect another. Instead, health-care delivery requires a broader person-centred treatment plan based on collaborative, patient-oriented values and goals.
We examined the individual variability, thematic content, and sociodemographic correlates of valued life abilities and activities among multimorbid veterans diagnosed with life-altering cancer.
Participants were 144 veterans in the 'Vet-Cares' study who completed a health-care values and goals scale 12 months after diagnosis of head and neck, gastro-oesophageal, or colorectal cancer. They had mean age of 65 years and one quarter identified as Hispanic and/or African American.
At twelve months post-diagnosis, participants rated 16 life abilities/activities in their importance to quality of life on a 10-point Likert scale, during an in-person interview. Scale themes were validated via exploratory factor analysis and examining associations with sociodemographic variables.
Participants rated most life abilities/activities as extremely important. Variability in responses was sufficient to identify three underlying values themes in exploratory factor analysis: self-sufficiency, enjoyment/comfort, and connection to family, friends and spirituality. Veterans with a spouse/partner rated self-sufficiency as less important. African American veterans rated connection as more important than did White veterans.
It is feasible yet challenging to ask older, multimorbid patients to rate relative importance of values associated with life abilities/activities. Themes related to self-sufficiency, enjoyment/comfort in daily life and connection are salient and logically consistent with sociodemographic traits. Future studies should explore their role in goal-directed health care.
当患者患有多种慢性病时,若针对一种疾病的治疗对另一种疾病产生不利影响,提供基于疾病的护理是不可行的。相反,医疗服务需要基于协作、以患者为导向的价值观和目标制定更广泛的以患者为中心的治疗计划。
我们研究了被诊断患有改变生活的癌症的多病退伍军人重视的生活能力和活动的个体差异、主题内容以及社会人口学相关性。
参与者是“退伍军人关怀”研究中的144名退伍军人,他们在被诊断患有头颈癌、胃食管癌或结直肠癌12个月后完成了一份医疗保健价值观和目标量表。他们的平均年龄为65岁,四分之一的人被认定为西班牙裔和/或非裔美国人。
在诊断后12个月,参与者在一次面对面访谈中,就16种生活能力/活动对生活质量的重要性进行10分制的李克特量表评分。量表主题通过探索性因素分析以及与社会人口学变量的关联检验进行验证。
参与者将大多数生活能力/活动评为极其重要。回答的变异性足以在探索性因素分析中识别出三个潜在的价值观主题:自给自足、享受/舒适以及与家人、朋友和精神层面的联系。有配偶/伴侣的退伍军人认为自给自足不太重要。非裔美国退伍军人认为联系比白人退伍军人更为重要。
要求年龄较大、患有多种疾病的患者对与生活能力/活动相关的价值观的相对重要性进行评分是可行但具有挑战性的。与自给自足、日常生活中的享受/舒适以及联系相关的主题很突出,并且在逻辑上与社会人口学特征一致。未来的研究应探索它们在目标导向型医疗保健中的作用。