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癫痫青少年向成人医疗护理的过渡。

Transition to adult medical care for adolescents with epilepsy.

作者信息

Geerlings R P J, Aldenkamp A P, de With P H N, Zinger S, Gottmer-Welschen L M C, de Louw A J A

机构信息

Epilepsy Center Kempenhaeghe, P.O. Box 61, NL-5590 AB Heeze, The Netherlands.

Epilepsy Center Kempenhaeghe, P.O. Box 61, NL-5590 AB Heeze, The Netherlands; Department of Electrical Engineering, University of Technology, P.O. Box 513, NL-5600 MB Eindhoven, The Netherlands; Department of Neurology, Maastricht University Medical Center, P.O. Box 616, NL-6200 MD Maastricht, The Netherlands; Department of Neurology, Ghent University Hospital, 1K12-IA De Pintelaan 185, 9000 Gent, Belgium.

出版信息

Epilepsy Behav. 2015 Mar;44:127-35. doi: 10.1016/j.yebeh.2014.12.041. Epub 2015 Feb 10.

Abstract

INTRODUCTION

During transition to adult medical care, the adolescent with epilepsy is especially prone to emotional, mental, physical, and social developmental difficulties, leading to stigma and poor psychosocial and socioeconomic outcome in the long term.

OBJECTIVES

The aim of this review is twofold: to describe the psychosocial and medical transition from adolescence to adulthood and to evaluate the most effective model for transitional services in adolescents with epilepsy.

METHODS

We searched PubMed for quantitative and qualitative data about transition from adolescence to adulthood in patients with epilepsy.

RESULTS

A total of 49 articles were retrieved. We reviewed personal, psychosocial, and medical issues during transition and their long-term individual and societal consequences. Identifying risk factors for poor transition can lead to appropriate interventions for patients and their family. Although the concept of multidisciplinary transition care for adolescents with epilepsy is widely recognized, only a few transition clinics have been established. There is lack of evidence for their quality and cost-effectiveness.

CONCLUSION

In addition to medical problems, more attention should be paid to the risk of psychosocial problems during transition from pediatric to adult care. The implementation of transition care for adolescents with epilepsy is considered beneficial; however, its effectiveness should be further investigated.

摘要

引言

在向成人医疗护理过渡期间,患有癫痫的青少年特别容易出现情绪、心理、身体和社会发展方面的困难,长期来看会导致耻辱感以及不良的心理社会和社会经济后果。

目的

本综述的目的有两个:描述从青少年到成年的心理社会和医疗过渡,并评估针对患有癫痫的青少年的最有效过渡服务模式。

方法

我们在PubMed上搜索了有关癫痫患者从青少年到成年过渡的定量和定性数据。

结果

共检索到49篇文章。我们回顾了过渡期间的个人、心理社会和医疗问题及其长期的个人和社会后果。识别过渡不良的风险因素可为患者及其家庭带来适当的干预措施。虽然针对患有癫痫的青少年的多学科过渡护理概念已得到广泛认可,但仅建立了少数过渡诊所。缺乏关于其质量和成本效益的证据。

结论

除了医疗问题外,在从小儿护理向成人护理过渡期间,应更加关注心理社会问题的风险。对患有癫痫的青少年实施过渡护理被认为是有益的;然而,其有效性应进一步研究。

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