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做出合理且可实现的调整:学习障碍联络护士对在综合医院接受护理的学习障碍患者 “正确行事” 的贡献。

Making reasonable and achievable adjustments: the contributions of learning disability liaison nurses in 'Getting it right' for people with learning disabilities receiving general hospitals care.

作者信息

MacArthur Juliet, Brown Michael, McKechanie Andrew, Mack Siobhan, Hayes Matthew, Fletcher Joan

机构信息

Western General Hospital, Edinburgh, UK.

Health Services Research Unit, Edinburgh, UK.

出版信息

J Adv Nurs. 2015 Jul;71(7):1552-63. doi: 10.1111/jan.12629. Epub 2015 Feb 12.

Abstract

AIMS

To examine the role of learning disability liaison nurses in facilitating reasonable and achievable adjustments to support access to general hospital services for people with learning disabilities.

DESIGN

Mixed methods study involving four health boards in Scotland with established Learning Disability Liaison Nurses (LDLN) Services. Quantitative data of all liaison nursing referrals over 18 months and qualitative data collected from stakeholders with experience of using the liaison services within the previous 3-6 months.

METHODS

Six liaison nurses collected quantitative data of 323 referrals and activity between September 2008-March 2010. Interviews and focus groups were held with 85 participants included adults with learning disabilities (n = 5), carers (n = 16), primary care (n = 39), general hospital (n = 19) and liaison nurses (n = 6).

RESULTS/FINDINGS: Facilitating reasonable and achievable adjustments was an important element of the LDLNs' role and focussed on access to information; adjustments to care; appropriate environment of care; ensuring equitable care; identifying patient need; meeting patient needs; and specialist tools/resources.

CONCLUSION

Ensuring that reasonable adjustments are made in the general hospital setting promotes person-centred care and equal health outcomes for people with a learning disability. This view accords with 'Getting it right' charter produced by the UK Charity Mencap which argues that healthcare professionals need support, encouragement and guidance to make reasonable adjustments for this group. LDLNs have an important and increasing role to play in advising on and establishing adjustments that are both reasonable and achievable.

摘要

目的

探讨学习障碍联络护士在促进合理且可实现的调整措施方面所发挥的作用,以支持学习障碍患者获得综合医院服务。

设计

混合方法研究,涉及苏格兰的四个设有学习障碍联络护士(LDLN)服务的健康委员会。收集了18个月内所有联络护理转诊的定量数据,以及过去3 - 6个月内从有使用联络服务经验的利益相关者那里收集的定性数据。

方法

六名联络护士收集了2008年9月至2010年3月期间323次转诊及相关活动的定量数据。对85名参与者进行了访谈和焦点小组讨论,其中包括成年学习障碍患者(n = 5)、护理人员(n = 16)、初级保健人员(n = 39)、综合医院人员(n = 19)和联络护士(n = 6)。

结果/发现:促进合理且可实现的调整是LDLN角色的一个重要组成部分,重点在于获取信息;护理调整;适当的护理环境;确保公平护理;识别患者需求;满足患者需求;以及专业工具/资源。

结论

确保在综合医院环境中进行合理调整可促进以患者为中心的护理,并为学习障碍患者带来平等的健康结果。这一观点与英国慈善机构Mencap制定的“正确对待”宪章一致,该宪章认为医疗保健专业人员需要支持、鼓励和指导来为这一群体进行合理调整。LDLN在就合理且可实现的调整提供建议和确立调整措施方面发挥着重要且日益重要的作用。

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