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与普通人群相比,多发性硬化症患者的收入来源和收入水平:一项基于全国人口的研究。

Sources and level of income among individuals with multiple sclerosis compared to the general population: A nationwide population-based study.

作者信息

Wiberg Michael, Friberg Emilie, Stenbeck Magnus, Alexanderson Kristina, Norlund Anders, Hillert Jan, Tinghög Petter

机构信息

Department of Clinical Neuroscience, Karolinska Institutet, Sweden

Department of Clinical Neuroscience, Karolinska Institutet, Sweden.

出版信息

Mult Scler. 2015 Nov;21(13):1730-41. doi: 10.1177/1352458515570767. Epub 2015 Feb 19.

Abstract

INTRODUCTION

Multiple sclerosis (MS) is associated with reduced work capacity, but there is limited knowledge about MS patients' sources of income.

OBJECTIVES

The purpose of this study was to elucidate MS patients' earnings and social benefits compared to those of the general population.

METHODS

From nationwide registers of all residents in Sweden aged 21-64 years in 2010 (n=5,291,764), those with an MS diagnosis (n=13,979) were compared to a propensity score matched reference group (n=69,895). Descriptive statistics and regression models were used to estimate the percentage difference between the MS patients and the matched references regarding the following annual incomes: earnings, disability pension, sickness absence, disability allowance, unemployment compensation and social assistance.

RESULTS

Both MS patients and the matched references received most of their income from earnings followed by disability pension and sickness absence. MS patients that were diagnosed in 2010 had 15% lower earnings than the matched references, while MS patients diagnosed before 2005 had 38% lower earnings. Corresponding figures regarding summed social benefits were 33% and 130% higher for MS patients, respectively.

CONCLUSION

The results indicate that MS patients are overrepresented, in relative and absolute terms, regarding health-related benefits and have lower levels of earnings. However, the redistributing welfare systems appear to financially compensate the MS patients considerably.

摘要

引言

多发性硬化症(MS)与工作能力下降有关,但关于MS患者的收入来源了解有限。

目的

本研究的目的是阐明与普通人群相比,MS患者的收入和社会福利情况。

方法

从2010年瑞典全国21 - 64岁所有居民的登记册(n = 5,291,764)中,将确诊为MS的患者(n = 13,979)与倾向得分匹配的参照组(n = 69,895)进行比较。使用描述性统计和回归模型来估计MS患者与匹配参照组在以下年收入方面的百分比差异:收入、残疾抚恤金、病假缺勤、残疾津贴、失业补偿和社会救助。

结果

MS患者和匹配参照组的大部分收入都来自工资,其次是残疾抚恤金和病假缺勤。2010年确诊的MS患者收入比匹配参照组低15%,而2005年之前确诊的MS患者收入低38%。MS患者的社会福利总和相应数字分别比匹配参照组高33%和130%。

结论

结果表明,无论从相对还是绝对角度来看,MS患者在与健康相关的福利方面占比过高,收入水平较低。然而,再分配福利系统似乎在经济上对MS患者有相当大的补偿。

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