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本文引用的文献

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Parents' Constructions of the 'Problem' during Assessment and Diagnosis of their Child for an Autistic Spectrum Disorder.家长在评估和诊断孩子自闭症谱系障碍时对“问题”的建构。
J Health Psychol. 2000 Mar;5(2):241-54. doi: 10.1177/135910530000500214.
2
Stresses and coping strategies of Chinese families with children with autism and other developmental disabilities.自闭症和其他发育障碍儿童的中国家庭的压力和应对策略。
J Autism Dev Disord. 2011 Jun;41(6):783-95. doi: 10.1007/s10803-010-1099-3.
3
Raising an autistic child: perspectives from Turkish mothers.抚养自闭症儿童:来自土耳其母亲的观点
J Child Adolesc Psychiatr Nurs. 2010 May;23(2):92-9. doi: 10.1111/j.1744-6171.2010.00228.x.
4
Autism symptom topography and maternal socioemotional functioning.自闭症症状分布与母亲的社会情绪功能。
Am J Intellect Dev Disabil. 2010 May;115(3):234-49. doi: 10.1352/1944-7558-115.3.234.
5
Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome.自闭症和唐氏综合征学龄前儿童的父母的育儿压力和应对方式。
J Intellect Disabil Res. 2010 Mar;54(3):266-80. doi: 10.1111/j.1365-2788.2010.01258.x. Epub 2010 Feb 8.
6
Time demands of caring for children with autism: what are the implications for maternal mental health?照顾自闭症儿童的时间需求:对母亲心理健康有何影响?
J Autism Dev Disord. 2010 May;40(5):620-8. doi: 10.1007/s10803-009-0912-3.
7
Parenting stress in mothers of children with autism spectrum disorders.自闭症谱系障碍儿童母亲的育儿压力
J Spec Pediatr Nurs. 2009 Jul;14(3):157-65. doi: 10.1111/j.1744-6155.2009.00188.x.
8
Enrichment, stress, and growth from parenting an individual with an autism spectrum disorder.养育一名自闭症谱系障碍患者所带来的充实感、压力与成长。
J Intellect Dev Disabil. 2009 Jun;34(2):133-41. doi: 10.1080/13668250902845236.
9
Parenting a child with autism: contextual factors associated with enhanced daily parental mood.养育患有自闭症的孩子:与父母日常情绪改善相关的情境因素。
J Pediatr Psychol. 2009 May;34(4):419-29. doi: 10.1093/jpepsy/jsn094. Epub 2008 Sep 15.
10
Sleep problems of parents of typically developing children and parents of children with autism.发育正常儿童的父母与自闭症儿童的父母的睡眠问题。
J Genet Psychol. 2008 Sep;169(3):245-59. doi: 10.3200/GNTP.169.3.245-260.

伊朗自闭症谱系障碍儿童父母中母亲与父亲的压力比较。

Comparison of parental stress among mothers and fathers of children with autistic spectrum disorder in Iran.

作者信息

Soltanifar Atefeh, Akbarzadeh Farzad, Moharreri Fatemeh, Soltanifar Azadeh, Ebrahimi Alireza, Mokhber Naghmeh, Minoocherhr Ali, Ali Naqvi Syed Shojut

机构信息

Child and Adolescent Psychiatry, Psychiatry and Behavioral Sciences Research Center, Ibn-E-Sina Hosptal, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.

Psychiatry, Psychiatry and Behavioral Sciences Research Center, Ibn-E-Sina Hosptal, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.

出版信息

Iran J Nurs Midwifery Res. 2015 Jan-Feb;20(1):93-8.

PMID:25709697
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4325421/
Abstract

BACKGROUND

Most of the studies about parenting stress among parents of children with autistic spectrum disorder (ASD) have been conducted in western societies. The objective of this research, conducted in Iran, is to evaluate the parenting stress among fathers and mothers of children with ASD and find the correlation between severity of the disorder in children and the level of parental stress.

MATERIALS AND METHODS

Participants included 42 couples having children aged between 2 and 12 diagnosed with ASD based on Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) criteria. The diagnosis was made by two child and adolescent psychiatrists. Demographic information of the participants was collected using a questionnaire. The severity of pervasive developmental disorder in children was determined based on Childhood Autism Rating Scale (CARS); stress of parents was measured using Parenting Stress Index (PSI). Collected information was analyzed by the SPSS (version 16) software.

RESULTS

Evaluation of subscales in participants' data showed a positive correlation coefficient between the PSI-parent domain and Childhood Autism Rating Scale-Parent form CARS-P rating (r = 0.339, P =0 0.028) and also between the total stress index and CARS-P rating (r = 0.333, P = 0.031) for fathers. It is thus suggested that fathers of children with more severe developmental disorders experience more stress. The results showed significant differences between fathers and mothers in the three PSI subscales including PSI-child domain score (P < 0.005), PSI-parent domain score (P < 0.005), and the total stress index (P < 0.005). Mothers had significantly more stress than fathers.

CONCLUSIONS

These findings show that parents with ASD children have many emotional needs which should be considered in planning the effective treatment strategies for their children.

摘要

背景

大多数关于自闭症谱系障碍(ASD)患儿父母养育压力的研究是在西方社会进行的。本研究在伊朗开展,旨在评估ASD患儿父母的养育压力,并找出患儿疾病严重程度与父母压力水平之间的相关性。

材料与方法

研究对象包括42对夫妻,他们的孩子年龄在2至12岁之间,根据《精神疾病诊断与统计手册》第五版(DSM - 5)标准被诊断为ASD。诊断由两名儿童及青少年精神科医生进行。通过问卷收集参与者的人口统计学信息。根据儿童自闭症评定量表(CARS)确定儿童广泛性发育障碍的严重程度;使用父母养育压力指数(PSI)测量父母的压力。收集到的信息通过SPSS(版本16)软件进行分析。

结果

对参与者数据的分量表评估显示,父亲的PSI - 父母领域与儿童自闭症评定量表 - 父母形式CARS - P评分之间存在正相关系数(r = 0.339,P = 0.028),总压力指数与CARS - P评分之间也存在正相关系数(r = 0.333,P = 0.031)。因此表明,发育障碍较严重患儿的父亲经历的压力更大。结果显示,在PSI的三个分量表中,父亲和母亲之间存在显著差异,包括PSI - 儿童领域得分(P < 0.005)、PSI - 父母领域得分(P < 0.005)和总压力指数(P < 0.005)。母亲的压力明显大于父亲。

结论

这些发现表明,ASD患儿的父母有许多情感需求,在为他们的孩子制定有效的治疗策略时应予以考虑。