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中风管理:非正式照料者照料中风幸存者的负担与压力

Stroke management: Informal caregivers' burdens and strians of caring for stroke survivors.

作者信息

Gbiri Caleb Ademola, Olawale Olajide Ayinla, Isaac Sarah Oghenekewe

机构信息

Department of Physiotherapy, College of Medicine, University of Lagos, Lagos, Nigeria; Department of Psychiatry, Faculty of Clinical Sciences, University of Pretoria, Pretoria, South Africa.

Department of Physiotherapy, College of Medicine, University of Lagos, Lagos, Nigeria.

出版信息

Ann Phys Rehabil Med. 2015 Apr;58(2):98-103. doi: 10.1016/j.rehab.2014.09.017. Epub 2015 Jan 7.

Abstract

BACKGROUND AND AIMS

Stroke survivors live with varied degrees of disabilities and cares are provided largely by the informal caregivers. This study investigated informal caregivers' burden and strains of caring for stroke patients.

METHOD

This study involved 157 (81 males and 76 females) informal caregivers of stroke survivors receiving care in all secondary and tertiary health institutions with physiotherapy services in Lagos State, Nigeria. Information was collected through self-administered questionnaire during clinic-hours. Data was analyzed using Spearman's Rank Correlation Coefficient.

RESULT

The patients' age ranged between 20 and 79 (mean=59.6 ± 14.6 years). Sixty-one had haemorrhagic stroke while 96 had ischaemic stroke. The informal caregivers' age was 39.2 ± 12.8 years (range: 17-36 years). More (60.8%) participants reported moderate objective while 79.2% had mild subjective burdens. The following factors significantly increased (P<0.05) the level of burden and strains experienced by the informal caregivers: closer intimacy with the stroke survivors, fewer number of caregivers for the stroke patient, longer duration since the onset of stroke and more hours of caregiving per day. Caregiving had negative significant influence (P<0.05) on the social, emotional, health and financial well-beings of the informal caregivers.

CONCLUSION AND RECOMMENDATION

Caring for stroke survivors put social, emotional, health and financial burdens and strains on the informal caregivers. These burdens and strains increase with duration of stroke, intimacy, smaller number of caregivers and length of daily caregiving. Therefore, informal caregivers should be involved in the rehabilitation plan for stroke patients and their well-being should also be given adequate attention.

摘要

背景与目的

中风幸存者生活在不同程度的残疾之中,护理工作主要由非正式护理人员提供。本研究调查了非正式护理人员照顾中风患者的负担和压力。

方法

本研究纳入了157名(81名男性和76名女性)在尼日利亚拉各斯州所有设有物理治疗服务的二级和三级医疗机构接受护理的中风幸存者的非正式护理人员。在门诊时间通过自填问卷收集信息。使用斯皮尔曼等级相关系数分析数据。

结果

患者年龄在20至79岁之间(平均 = 59.6 ± 14.6岁)。61人患有出血性中风,96人患有缺血性中风。非正式护理人员的年龄为39.2 ± 12.8岁(范围:17 - 36岁)。更多(60.8%)参与者报告有中度客观负担,而79.2%有轻度主观负担。以下因素显著增加(P<0.05)了非正式护理人员所经历的负担和压力水平:与中风幸存者关系更亲密、中风患者的护理人员数量较少、中风发病后的持续时间较长以及每天的护理时间较多。护理对非正式护理人员的社会、情感、健康和财务状况有显著负面影响(P<0.05)。

结论与建议

照顾中风幸存者给非正式护理人员带来了社会、情感、健康和财务负担及压力。这些负担和压力随着中风持续时间、亲密程度、护理人员数量减少和每日护理时长的增加而增加。因此,应让非正式护理人员参与中风患者的康复计划,同时也应充分关注他们的福祉。

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